Guidelines for the Recognition and Management of Childhood Dystonia in the Critical Care Environment - Consultation on Guideline Scope May 2026 Survey

Thank you for taking the time to provide feed back on the proposed scope of this Guideline.

The draft scope for this guideline can be found at the following link:

https://bpna.org.uk/?page=dystonia-project-scoping-consultation

1.Name of respondent to Draft Scope Consultation

2.Are you providing feedback as an individual with lived experience of dystonia, or as a professional involved in the care of Children and Young People with Dystonia

Individual with lived experience of dystonia

Professional involved in the care of Children and Young People with Dystonia

Both

3.If you are providing feedback as a Professional, what is your professional role?

4.If you are providing feedback on behalf of a professional organisation, what is the name of that organisation?

5.Please provide any feedback you have on the proposed population this guideline will and won't cover in the box below.

6.Please provide any feedback you have on the Health care settings we have proposed to cover in this guideline in the box below

7.Please provide any feedback you have on the clinical issues we have proposed that this guideline will and will not cover in the box below

8.If you have any further feedback/comments on the scope we have proposed for this guideline, please provide them in the box below

9.If you would like to be updated with our progress with this guideline, please provide your email in the box below

Thank you for your time and for the feedback you have provided

Dr Daniel E Lumsden
Dr Sofia Cuevas-Asturias

Co-Chair Guideline Development Group