The Global Colon Cancer Association is conducting a brief survey on biomarkers among the colorectal (also known as bowel cancer) patient, survivor, and caregiver community.  The goal of this survey is to gather information directly from patients, survivors, and caregivers so that we can develop educational materials and campaigns that best meet the needs of various communities across the globe.


By completing this survey, you have the option to be entered into a drawing where 2 survey respondents will have a $500 donation made to the charity of their choice, in their name (or a loved one’s name).  Your contact information will NOT be shared with anyone outside of the GCCA.  You can opt out of communications from GCCA at any time.


Caregivers: Please note that the questions are asked in a way that we are speaking to a person who is a colorectal cancer patient or survivor.  If you are answering this survey as a caregiver,  the “I” in the question is referring to a patient or survivor, and you should answer regarding their experience. 

If you are answering on behalf of an individual that has passed away, we are sorry for your loss and appreciate you filling out the survey on their behalf.  Please fill out the survey answering the questions about your loved one.  In the comment boxes, please feel free to share more about your experience as a caregiver and biomarker testing.

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* 1. Do you know the type of biomarker test that was used? (Select all that apply)

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* 2. When did your healthcare team talk with you about biomarker testing?

Note: When we say "treatment", that includes surgery, radiation, chemotherapy, or targeted therapy such as immunotherapy.

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* 3. For the following biomarkers, please select all biomarkers you are aware of, if you were tested and if you know the results.

Note: If your biomarker testing results listed a biomarker as being “WT” or “Wild-Type”, this means you do NOT have the mutation.

  I am aware I have been tested I don't know if I've been tested I tested positive for having this biomarker mutation. The results were not “WT" or Wild-Type. I have been tested for but I don't know the result
BRAF
KRAS
NRAS
RAS (KRAS, NRAS, HRAS)
MSI-High/dMMR
MSS
NTRK
HER2 (ERBB2)
Other, please explain below

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* 4. How were the results of your biomarker testing explained to you?

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* 5. If the results were shared with you, how were they given to you? (Electronically, over the phone, in-person, or another way?)

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* 6. How would you like to receive biomarker testing results?

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* 7. Would you like to share any information about your experience with biomarker testing?

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* 8. Would you be interested in participating in a focus group or town hall meeting to share additional thoughts? If so, please include your email contact information in the next question. (Your information will remain confidential and will not be shared).

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* 9. Would you like to be entered into the drawing for the charity of your choice to receive a $500 donation in your honor?  If so, please provide your name and email address. 

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* 10. Are you:

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* 11. When you were diagnosed, what stage was your cancer?

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* 12. When were you diagnosed with colorectal cancer?

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* 14. What is your age?
(Caregivers: if answering on behalf of an individual who passed away, please choose "other" and list their age when they died in the comment box.)

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* 15. What is your race or ethnicity?

T