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UK Kidney Association Ethics and Law Committee Survey 2025

This survey is to inform the work of the new UK Kidney Association's Ethics and Law Committee. The information you provide will be used to identify areas of focus for the coming years, including the development of new support and guidance on ethical and legal aspects of kidney care, where appropriate.

The survey is anonymous, and your completion will be taken as your consent to the Committee using the information provided. As responses are anonymous, it will not be possible for us to remove your data after it is submitted.

Thank you for taking the time to support the Committee’s work. We would appreciate it if you would share the survey with colleagues.

If you have any questions regarding this survey, please contact: jordan.parsons@rhul.ac.uk
Demographic Information
Which renal unit do you work in?
What is your role?
Do you work in adult or paediatric kidney care?
Ethical and Legal Issues
Please rate the following based on how much you would like us to focus on them when developing guidance and activities. Use the scale from 1 to 5, with 1 being “do not focus on” and 5 being “prioritise”.
1
2
3
4
5
Capacity assessment and best interests decisions (adult care) OR Gillick competence and best interests decisions (paediatric care)
Personalised consent for nephrological treatment (dialysis, transplant, immune suppression, etc.)
Advance care planning (including DNACPR discussions and escalation planning/ceilings of treatment)
Withdrawal from active treatment (whether initiated by patient or clinician)
Research ethics
Ethical issues in renal transplantation
Ethical issues concerning renal genetics (testing and treatment of inherited diseases)
Ethical appraisal of novel therapies or technologies (AI, artificial organs, xenotransplantation)
Managing deliberate non-concordance with treatment
Addressing and mitigating for factors precipitating health inequalities (including learning disability, immigration, and socioeconomic status)
Committee Work
One of the Committee’s functions is to develop support and guidance on ethical and legal issues facing kidney health professionals. What do you consider a priority area that you would like the Committee to focus its attention on? This might be something from the list above, or something entirely different.
Are there any particular forms you would like support and guidance to take? For example, webinars, videos, booklets.
In addition to developing support and guidance, are there any other activities you would like to see the Committee undertake within the remit of ethics and law?