Clinical trials test new treatments to see if they're safe and effective before they become available to patients. Treatments include medications, medical devices, interventions and surgical procedures. These studies are essential for bringing scientific discoveries from the laboratory into real-world medical care. By participating in a clinical trial, you can help accelerate the development of new therapies while potentially accessing treatments that aren't yet widely available.
This survey will help us understand what makes it easier or harder for families to participate in clinical trials for Prader-Willi Syndrome (PWS). We'll use your insights in three important ways:
· To guide how PWRFA promotes and communicates trials to the PWS community.
· To inform the types of trials PWRFA supports.
· To educate companies and clinicians as part of our advocacy work.
Your responses will help shape a clinical trial landscape that better serves families affected by PWS.
Thank you for taking the time to share your experience and perspective. The survey will take between 10 and 15 minutes to complete. Your input is invaluable in helping researchers and trial sponsors create studies that truly serve the PWS community.
