Breast Density Notification

We would appreciate your opinion........

British Columbia is set to notify women of their breast density Oct. 15th, 2018.
Breast density notification is new to Canada.

The Canadian Partnership Against Cancer has asked Dense Breasts Canada (DBC) to share our recommendations on what to tell women and how to tell them about their breast density.

Your input will help form the recommendations that will be put forward by DBC's medical advisor, Dr. Paula Gordon, to the leadership of provincial screening programs.

DBC will also be involved in a working group set up by BC Cancer to design and test educational content and strategies.

This survey will take approximately 3 minutes to complete. Responses are anonymous.
Please press OK to begin. Thank you!

Question Title

* 1. Have you ever had a mammogram?

Yes

Question Title

* 2. Which notification message is best for notifying a woman that she has dense breasts?
Choose ONE option from below.

Your mammogram indicates that you have dense breast tissue. Dense breast tissue is a normal finding that is present in about 40 percent of women. Dense breast tissue can make it more difficult to detect cancer on a mammogram and is associated with an increased risk for breast cancer (higher risk than having a mother or sister with breast cancer). This information is provided to raise your awareness of the impact of breast density on cancer detection and to encourage you to discuss this issue, as well as other breast cancer risk factors, with your health care provider.

The mammogram shows that your breast tissue is dense. Dense breast tissue is very common and is not abnormal. But dense breast tissue can make it harder to find cancer on a mammogram. Also, dense breast tissue may increase your breast cancer risk. This information about the result of your mammogram report is given to you to raise your awareness. Use this report when you talk to your doctor about your own risks for breast cancer, which includes your family history.

Your mammogram indicates that you have dense breast tissue. Dense breast tissue is relatively common and is found in about forty percent (40%) of women. The presence of dense tissue can make it more difficult to detect cancers in the breast by mammography because it can hide small abnormalities and is associated with an increased risk.

Your mammogram demonstrates that you have dense breast tissue, which could hide abnormalities. Dense breast tissue, in and of itself, is a relatively common condition. Therefore, this information is not provided to cause undue concern; rather, it is to raise your awareness and promote discussion with your health care provider regarding the presence of dense breast tissue in addition to other risk factors.

Your mammogram shows that you have dense breast tissue. Dense breast tissue is common. However, dense breast tissue can hide breast cancer, so that it may not be seen on routine mammography. It is also associated with an increased risk of developing breast cancer. You should discuss these results with your doctor.

I would like to see a modification to one of these notifications.

Other (please specify)

Question Title

* 3. Currently in BC, women are advised if their mammogram results are “normal” or “abnormal”. Going forward, women will also be told of their breast density category (A, B, C, or D).
There are risks associated with dense breasts (categories C and D). Where would you recommend the associated risks be written?

Choose ONE option from below.

Only in the letter, no brochure needed

Only in an attached brochure about breast density

In both letter and brochure

Other (please specify)

Question Title

* 4. Will anxiety or confusion be created if the letter with the mammogram results also includes information on the associated risks of dense breasts?

Choose ONE option from below.

Yes

Unsure

Would prefer to see associated risks only discussed in brochure

Other (please specify)

Question Title

* 5. Which of the following should be included in the informational brochure, if a brochure is used?

Choose as many options as you like.

Information on the two associated risks

Images of 4 categories of breast density

Images of fatty vs. dense breasts

Information for women who do not have dense breasts

What women can do if they have dense breasts

Information on why or why not supplemental screening is recommended

Link to BC Cancer website

Link to video on breast density

Other (please specify)

Question Title

* 6. In addition to the letter and proposed brochure, should any additional resources also be used for conveying information on breast density? Please choose as many as you feel would be beneficial.

Videos on BC Cancer website & their social media channels

Information on BC Cancer website

Posters at mammography clinics

Brochures available at mammography clinics

Information (flyer strip) given to women about the categories of breast density by the tech performing the mammogram

A phone number where women can leave messages/questions to be answered within 48 hrs by BC Cancer staff

Other (please specify)

Question Title

* 7. Your ideas on how to reach women whose first language is not English, as well as how to reach women in marginalized communities are welcome below.

Question Title

* 8. What else should be considered when informing women of their breast density? Please add any additional comments, questions, or suggestions. Your assistance in helping us to form our recommendations is greatly appreciated.

Click NEXT and DONE to complete this survey.

Question Title

* 1. Have you ever had a mammogram?

Question Title

* 2. Which notification message is best for notifying a woman that she has dense breasts? Choose ONE option from below.

Question Title

Question Title

* 4. Will anxiety or confusion be created if the letter with the mammogram results also includes information on the associated risks of dense breasts?Choose ONE option from below.

Question Title

* 5. Which of the following should be included in the informational brochure, if a brochure is used?Choose as many options as you like.

Question Title

* 6. In addition to the letter and proposed brochure, should any additional resources also be used for conveying information on breast density? Please choose as many as you feel would be beneficial.

Question Title

* 7. Your ideas on how to reach women whose first language is not English, as well as how to reach women in marginalized communities are welcome below.

Question Title

* 8. What else should be considered when informing women of their breast density? Please add any additional comments, questions, or suggestions. Your assistance in helping us to form our recommendations is greatly appreciated. Click NEXT and DONE to complete this survey.

* 2. Which notification message is best for notifying a woman that she has dense breasts?
Choose ONE option from below.

* 4. Will anxiety or confusion be created if the letter with the mammogram results also includes information on the associated risks of dense breasts?

Choose ONE option from below.

* 5. Which of the following should be included in the informational brochure, if a brochure is used?

Choose as many options as you like.

* 8. What else should be considered when informing women of their breast density? Please add any additional comments, questions, or suggestions. Your assistance in helping us to form our recommendations is greatly appreciated.

Click NEXT and DONE to complete this survey.