GANSID: Training and Capacity Building Needs Survey

One of the objectives of the Global Action Network for Sickle Cell and Other Inherited Blood Disorders (GANSID) is to act as a medium for capacity building, training, and mentorship to:

Equip patient organizations with advocacy skills and leadership expertise relevant to their communities; and
Connect patient organizations to better work with and support one another.

As a next step in developing the training program, the GANSID has created a short questionnaire to better understand the skills development and capacity-building needs of patient organizations within the hereditary blood disorders community, and in different settings.
If you have already completed this questionnaire, you do not need to complete it again, If you have not, we seek your completion no later than January 30, 2024. Thank you.

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* 1. Demography:

First Name, Last Name

E-mail address

Disease Area

Name of Organization

Country, State/Province

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* 2. Please select up to 3 topics that reflect your most important development and training needs.

Communication strategies

Board Governance

Presentation Skills

Financial Reporting

What are clinical trials

Managing and Evaluating Performance

Volunteer Recruitment, Training and Retention

How to bring research and clinical trials to your world

Human Resources

Data collection and Analysis

Strategic Plan and Workplan Development

Management Fundamentals including styles

Fundraising

Project Management

Working with Governments

Leadership Styles

Research 101

Effective Advocacy

Contracts and Negotiations

GANSID: Training and Capacity Building Needs Survey

Question Title

* 1. Demography:

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* 2. Please select up to 3 topics that reflect your most important development and training needs.

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* 3. Kindly expand the knowledge gaps that exist within your organization?

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* 4. What type of training will help you close these knowledge and skill gaps?

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* 5. Would you benefit from mentorship program? Kindly specify the area of mentorship need.