One of the objectives of the Global Action Network for Sickle Cell and Other Inherited Blood Disorders (GANSID) is to act as a medium for capacity building, training, and mentorship to:
  • Equip patient organizations with advocacy skills and leadership expertise relevant to their communities; and
  • Connect patient organizations to better work with and support one another.
As a next step in developing the training program, the GANSID has created a short questionnaire to better understand the skills development and capacity-building needs of patient organizations within the hereditary blood disorders community, and in different settings.
If you have already completed this questionnaire, you do not need to complete it again, If you have not, we seek your completion no later than January 30, 2024. Thank you.

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* 1. Demography:

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* 2. Please select up to 3 topics that reflect your most important development and training needs.

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* 3. Kindly expand the knowledge gaps that exist within your organization?

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* 4. What type of training will help you close these knowledge and skill gaps?

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* 5. Would you benefit from mentorship program? Kindly specify the area of mentorship need.

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