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* 1. Please mark below how important to you or your child it is to improve care in each of these areas:

Below, ”you” refers to you or your child for whom you are completing this survey. You may complete the survey multiple times – once for each family member with OI.

  EXTREMELY IMPORTANT TO IMPROVE VERY IMPORTANT TO IMPROVE COULD BE HELPFUL NOT NECESSARY TO IMPROVE NOT IMPORTANT – ALREADY WORKED OUT WELL
Managing fractures that don’t need surgery
Managing fracture pain
Managing bone pain
Knowing when to perform rodding surgeries of arms
Knowing when to perform rodding surgeries of legs
Reducing the number of surgeries during childhood
Decreasing anxiety around fractures and surgeries
Managing post-operative pain
Easier postoperative splinting/immobilization

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* 2. Have you been told that you could not have surgery or implants for a fracture or bowing due to being too young?

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* 3. If yes, which age range did this occur?

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* 4. Have you been told that you could not have surgery or implants for a fracture or bowing due to having bones that are too small?

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* 5. Do you or have you ever done aqua therapy?

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* 6. Does your orthopaedic surgeon offer you surgery on long bones (femur, tibia, humerus) with telescoping (ie FD rods, Bailey-Dubow) rods?

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* 7. Does your orthopaedic surgeon offer you surgery on long bones (femur, tibia, humerus) with non-telescoping rods (ie SLIM nail, k-wire, Williams rod)?

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* 8. What type of OI do you have?

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* 9. What is your OI severity?

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* 10. What is your age? (in years)

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* 11. How do you move about outside the your home? (check all that apply):

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* 12. Please include any comments you would like to pass along:

0 of 12 answered
 

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