Emergency Hardship Program
Emergency Hardship Program (1) Not helpful at all
Emergency Hardship Program (2)
Emergency Hardship Program (3)
Emergency Hardship Program (4)
Emergency Hardship Program (5) Very helpful
Emergency Hardship Program N/A
Community Connections & Coffee Webinars
Community Connections & Coffee Webinars (1) Not helpful at all
Community Connections & Coffee Webinars (2)
Community Connections & Coffee Webinars (3)
Community Connections & Coffee Webinars (4)
Community Connections & Coffee Webinars (5) Very helpful
Community Connections & Coffee Webinars N/A
Community Webinars with Advocacy and Industry Partners
Community Webinars with Advocacy and Industry Partners (1) Not helpful at all
Community Webinars with Advocacy and Industry Partners (2)
Community Webinars with Advocacy and Industry Partners (3)
Community Webinars with Advocacy and Industry Partners (4)
Community Webinars with Advocacy and Industry Partners (5) Very helpful
Community Webinars with Advocacy and Industry Partners N/A
Family Support & Medical Conference
Family Support & Medical Conference (1) Not helpful at all
Family Support & Medical Conference (2)
Family Support & Medical Conference (3)
Family Support & Medical Conference (4)
Family Support & Medical Conference (5) Very helpful
Family Support & Medical Conference N/A
Community Newsletters
Community Newsletters (1) Not helpful at all
Community Newsletters (2)
Community Newsletters (3)
Community Newsletters (4)
Community Newsletters (5) Very helpful
Community Newsletters N/A
Patient/Family Experience Stories
Patient/Family Experience Stories (1) Not helpful at all
Patient/Family Experience Stories (2)
Patient/Family Experience Stories (3)
Patient/Family Experience Stories (4)
Patient/Family Experience Stories (5) Very helpful
Patient/Family Experience Stories N/A
Newly diagnosed services
Newly diagnosed services (1) Not helpful at all
Newly diagnosed services (2)
Newly diagnosed services (3)
Newly diagnosed services (4)
Newly diagnosed services (5) Very helpful
Newly diagnosed services N/A
Patient advocacy
Patient advocacy (1) Not helpful at all
Patient advocacy (2)
Patient advocacy (3)
Patient advocacy (4)
Patient advocacy (5) Very helpful
Patient advocacy N/A
Niemann-Pick disease advocacy
Niemann-Pick disease advocacy (1) Not helpful at all
Niemann-Pick disease advocacy (2)
Niemann-Pick disease advocacy (3)
Niemann-Pick disease advocacy (4)
Niemann-Pick disease advocacy (5) Very helpful
Niemann-Pick disease advocacy N/A
Family services consultations
Family services consultations (1) Not helpful at all
Family services consultations (2)
Family services consultations (3)
Family services consultations (4)
Family services consultations (5) Very helpful
Family services consultations N/A
Bereavement services
Bereavement services (1) Not helpful at all
Bereavement services (2)
Bereavement services (3)
Bereavement services (4)
Bereavement services (5) Very helpful
Bereavement services N/A
Legacy connections programs
Legacy connections programs (1) Not helpful at all
Legacy connections programs (2)
Legacy connections programs (3)
Legacy connections programs (4)
Legacy connections programs (5) Very helpful
Legacy connections programs N/A