Welcome to our Survey

Thank you for participating in our community survey. Your feedback is vitally important to the future of our programming and research investments. We value your time, and we anticipate that this will take 15-20 minutes of your time, and you may remain anonymous if you wish. Should you want us to reach out to you, there is an opportunity to list contact details at the end of the survey.

Please note that you may change your answers and return to the survey until you click DONE. Should you leave the survey, you will need to return to it from the same device you started the survey with.

Question Title

* 1. Are you the parent or guardian of an individual living with CDKL5 Deficiency?

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