Autism Society of North Carolina Public Policy Targets 2017-2019

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The Autism Society of North Carolina advocates with policymakers at the General Assembly, State Departments and Divisions as well as LME/MCO's to help create better services and opportunities for people on the autism spectrum. We are developing our public policy targets for the two-year legislative cycle that begins in January 2017.

Please help us by taking this quick survey, which asks you to prioritize potential public policy targets for the next two years.

ASNC is committed to working with policymakers to expand access to services and supports, expand access to health care, access to employment, improve education for children and young adults, improve services infrastructure, and ensure that people on the spectrum are able to exercise their rights and live in a just world. Given the MANY needs for public policy advocacy across all of these issues and the limited resources with which to advocate, ASNC must select focuses as we move forward.

Whether you are an individual on the spectrum, a family member, friend, professional or other person who cares about people with autism, we want to know what you think. You are a person for whom we advocate, so your input into our public policy targets is crucial. And yes, choosing which issues are most important to you among the many important issues is difficult. We recognize that difficulty and appreciate your willingness to help us make the tough choices. Thank you for participation in our previous survey which was used for strategic planning purposes. Our final public policy targets will be released in December or January.

Please complete the following selection of demographic questions. These responses help in our conversations on local and statewide levels to measure the varying needs of NC citizens and communities.

Please rank the following public policy issues in each section from most important to least important.

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* 1. Improving NC education

	1 Highest Priority	2	3	4	5	6	7 Lowest Priority
A more caregiver/child friendly Individualized Education Program (IEP)	A more caregiver/child friendly Individualized Education Program (IEP) 1 Highest Priority	A more caregiver/child friendly Individualized Education Program (IEP) 2	A more caregiver/child friendly Individualized Education Program (IEP) 3	A more caregiver/child friendly Individualized Education Program (IEP) 4	A more caregiver/child friendly Individualized Education Program (IEP) 5	A more caregiver/child friendly Individualized Education Program (IEP) 6	A more caregiver/child friendly Individualized Education Program (IEP) 7 Lowest Priority
Increase per student funding for special education	Increase per student funding for special education 1 Highest Priority	Increase per student funding for special education 2	Increase per student funding for special education 3	Increase per student funding for special education 4	Increase per student funding for special education 5	Increase per student funding for special education 6	Increase per student funding for special education 7 Lowest Priority
Increase training and professional development of teachers	Increase training and professional development of teachers 1 Highest Priority	Increase training and professional development of teachers 2	Increase training and professional development of teachers 3	Increase training and professional development of teachers 4	Increase training and professional development of teachers 5	Increase training and professional development of teachers 6	Increase training and professional development of teachers 7 Lowest Priority
Improve disability assessment process in schools	Improve disability assessment process in schools 1 Highest Priority	Improve disability assessment process in schools 2	Improve disability assessment process in schools 3	Improve disability assessment process in schools 4	Improve disability assessment process in schools 5	Improve disability assessment process in schools 6	Improve disability assessment process in schools 7 Lowest Priority
Improve transition planning and implementation	Improve transition planning and implementation 1 Highest Priority	Improve transition planning and implementation 2	Improve transition planning and implementation 3	Improve transition planning and implementation 4	Improve transition planning and implementation 5	Improve transition planning and implementation 6	Improve transition planning and implementation 7 Lowest Priority
Ensure employment/careers is preferred outcome of education	Ensure employment/careers is preferred outcome of education 1 Highest Priority	Ensure employment/careers is preferred outcome of education 2	Ensure employment/careers is preferred outcome of education 3	Ensure employment/careers is preferred outcome of education 4	Ensure employment/careers is preferred outcome of education 5	Ensure employment/careers is preferred outcome of education 6	Ensure employment/careers is preferred outcome of education 7 Lowest Priority
Expand post-secondary education options for IDD	Expand post-secondary education options for IDD 1 Highest Priority	Expand post-secondary education options for IDD 2	Expand post-secondary education options for IDD 3	Expand post-secondary education options for IDD 4	Expand post-secondary education options for IDD 5	Expand post-secondary education options for IDD 6	Expand post-secondary education options for IDD 7 Lowest Priority

Other thoughts?

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* 2. Expanding access to services and supports (Please note that increasing access may not mean ASNC will be directly involved in providing the service, only in advocating for increased access).

	1 Highest Priority	2	3	4	5	6	7	8	9	10 Lowest Priority
Reduce waiting lists for CAP/Innovations waiver slots.	Reduce waiting lists for CAP/Innovations waiver slots. 1 Highest Priority	Reduce waiting lists for CAP/Innovations waiver slots. 2	Reduce waiting lists for CAP/Innovations waiver slots. 3	Reduce waiting lists for CAP/Innovations waiver slots. 4	Reduce waiting lists for CAP/Innovations waiver slots. 5	Reduce waiting lists for CAP/Innovations waiver slots. 6	Reduce waiting lists for CAP/Innovations waiver slots. 7	Reduce waiting lists for CAP/Innovations waiver slots. 8	Reduce waiting lists for CAP/Innovations waiver slots. 9	Reduce waiting lists for CAP/Innovations waiver slots. 10 Lowest Priority
Improve crisis prevention and response.	Improve crisis prevention and response. 1 Highest Priority	Improve crisis prevention and response. 2	Improve crisis prevention and response. 3	Improve crisis prevention and response. 4	Improve crisis prevention and response. 5	Improve crisis prevention and response. 6	Improve crisis prevention and response. 7	Improve crisis prevention and response. 8	Improve crisis prevention and response. 9	Improve crisis prevention and response. 10 Lowest Priority
Expand recreational options.	Expand recreational options. 1 Highest Priority	Expand recreational options. 2	Expand recreational options. 3	Expand recreational options. 4	Expand recreational options. 5	Expand recreational options. 6	Expand recreational options. 7	Expand recreational options. 8	Expand recreational options. 9	Expand recreational options. 10 Lowest Priority
Increase access to early intervention (services for birth to 3 years).	Increase access to early intervention (services for birth to 3 years). 1 Highest Priority	Increase access to early intervention (services for birth to 3 years). 2	Increase access to early intervention (services for birth to 3 years). 3	Increase access to early intervention (services for birth to 3 years). 4	Increase access to early intervention (services for birth to 3 years). 5	Increase access to early intervention (services for birth to 3 years). 6	Increase access to early intervention (services for birth to 3 years). 7	Increase access to early intervention (services for birth to 3 years). 8	Increase access to early intervention (services for birth to 3 years). 9	Increase access to early intervention (services for birth to 3 years). 10 Lowest Priority
Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA).	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 1 Highest Priority	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 2	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 3	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 4	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 5	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 6	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 7	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 8	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 9	Expand options and integrate care for those with dual-diagnosis (IDD and MH/SA). 10 Lowest Priority
Expand residential options for adults.	Expand residential options for adults. 1 Highest Priority	Expand residential options for adults. 2	Expand residential options for adults. 3	Expand residential options for adults. 4	Expand residential options for adults. 5	Expand residential options for adults. 6	Expand residential options for adults. 7	Expand residential options for adults. 8	Expand residential options for adults. 9	Expand residential options for adults. 10 Lowest Priority
Increase employment and ensure employment/career is preferred outcome of services.	Increase employment and ensure employment/career is preferred outcome of services. 1 Highest Priority	Increase employment and ensure employment/career is preferred outcome of services. 2	Increase employment and ensure employment/career is preferred outcome of services. 3	Increase employment and ensure employment/career is preferred outcome of services. 4	Increase employment and ensure employment/career is preferred outcome of services. 5	Increase employment and ensure employment/career is preferred outcome of services. 6	Increase employment and ensure employment/career is preferred outcome of services. 7	Increase employment and ensure employment/career is preferred outcome of services. 8	Increase employment and ensure employment/career is preferred outcome of services. 9	Increase employment and ensure employment/career is preferred outcome of services. 10 Lowest Priority
Expand non-waiver services for IDD (state-funded/b3/IPRS)	Expand non-waiver services for IDD (state-funded/b3/IPRS) 1 Highest Priority	Expand non-waiver services for IDD (state-funded/b3/IPRS) 2	Expand non-waiver services for IDD (state-funded/b3/IPRS) 3	Expand non-waiver services for IDD (state-funded/b3/IPRS) 4	Expand non-waiver services for IDD (state-funded/b3/IPRS) 5	Expand non-waiver services for IDD (state-funded/b3/IPRS) 6	Expand non-waiver services for IDD (state-funded/b3/IPRS) 7	Expand non-waiver services for IDD (state-funded/b3/IPRS) 8	Expand non-waiver services for IDD (state-funded/b3/IPRS) 9	Expand non-waiver services for IDD (state-funded/b3/IPRS) 10 Lowest Priority
Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid.	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 1 Highest Priority	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 2	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 3	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 4	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 5	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 6	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 7	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 8	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 9	Expand access to treatment options (such as ABA, behavior supports,etc.) through Medicaid. 10 Lowest Priority
Expand access to Medicaid.	Expand access to Medicaid. 1 Highest Priority	Expand access to Medicaid. 2	Expand access to Medicaid. 3	Expand access to Medicaid. 4	Expand access to Medicaid. 5	Expand access to Medicaid. 6	Expand access to Medicaid. 7	Expand access to Medicaid. 8	Expand access to Medicaid. 9	Expand access to Medicaid. 10 Lowest Priority

Other thoughts?

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* 3. Rights and Justice Issues

	1 Highest Priority	2	3
Ensure Guardianship program has stable funding, good training for courts and families, and focuses on restoration of rights when possible.	Ensure Guardianship program has stable funding, good training for courts and families, and focuses on restoration of rights when possible. 1 Highest Priority	Ensure Guardianship program has stable funding, good training for courts and families, and focuses on restoration of rights when possible. 2	Ensure Guardianship program has stable funding, good training for courts and families, and focuses on restoration of rights when possible. 3
Ban prone restraint in schools.	Ban prone restraint in schools. 1 Highest Priority	Ban prone restraint in schools. 2	Ban prone restraint in schools. 3
Require additional training of agencies involved in guardianship and child welfare in NC.	Require additional training of agencies involved in guardianship and child welfare in NC. 1 Highest Priority	Require additional training of agencies involved in guardianship and child welfare in NC. 2	Require additional training of agencies involved in guardianship and child welfare in NC. 3

Other thoughts?

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* 4. Improve Public Services Infrastructure

	1 Highest Priority	2	3	4	5	6	7 Lowest Priority
Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options.	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 1 Highest Priority	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 2	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 3	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 4	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 5	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 6	Ensure the Medicaid system addresses the needs of people with autism as it considers new managed care options. 7 Lowest Priority
Restore independent case management to services system.	Restore independent case management to services system. 1 Highest Priority	Restore independent case management to services system. 2	Restore independent case management to services system. 3	Restore independent case management to services system. 4	Restore independent case management to services system. 5	Restore independent case management to services system. 6	Restore independent case management to services system. 7 Lowest Priority
Address service quality by improving career options and rates for direct service workforce.	Address service quality by improving career options and rates for direct service workforce. 1 Highest Priority	Address service quality by improving career options and rates for direct service workforce. 2	Address service quality by improving career options and rates for direct service workforce. 3	Address service quality by improving career options and rates for direct service workforce. 4	Address service quality by improving career options and rates for direct service workforce. 5	Address service quality by improving career options and rates for direct service workforce. 6	Address service quality by improving career options and rates for direct service workforce. 7 Lowest Priority
Improve distribution of services across the state.	Improve distribution of services across the state. 1 Highest Priority	Improve distribution of services across the state. 2	Improve distribution of services across the state. 3	Improve distribution of services across the state. 4	Improve distribution of services across the state. 5	Improve distribution of services across the state. 6	Improve distribution of services across the state. 7 Lowest Priority
Ensure services system is developed and focused on meaningful, person-centered outcomes.	Ensure services system is developed and focused on meaningful, person-centered outcomes. 1 Highest Priority	Ensure services system is developed and focused on meaningful, person-centered outcomes. 2	Ensure services system is developed and focused on meaningful, person-centered outcomes. 3	Ensure services system is developed and focused on meaningful, person-centered outcomes. 4	Ensure services system is developed and focused on meaningful, person-centered outcomes. 5	Ensure services system is developed and focused on meaningful, person-centered outcomes. 6	Ensure services system is developed and focused on meaningful, person-centered outcomes. 7 Lowest Priority
Reduce paperwork and administrative barriers to accessing services.	Reduce paperwork and administrative barriers to accessing services. 1 Highest Priority	Reduce paperwork and administrative barriers to accessing services. 2	Reduce paperwork and administrative barriers to accessing services. 3	Reduce paperwork and administrative barriers to accessing services. 4	Reduce paperwork and administrative barriers to accessing services. 5	Reduce paperwork and administrative barriers to accessing services. 6	Reduce paperwork and administrative barriers to accessing services. 7 Lowest Priority
Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports.	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 1 Highest Priority	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 2	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 3	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 4	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 5	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 6	Ensure the system maintains quality and expands training for professionals that offer high quality, autism-specific services and supports. 7 Lowest Priority

Other thoughts?

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* 5. Section 5: Have we missed a public policy issue that is of great importance to you? Please add it in the space below.

The next few demographic questions help us to understand the unique needs of various groups and areas in NC. By helping us understand distinct community needs this helps with local advocacy. Thank you for this information.

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* 6. What is the age (or ages) of the person with Autism you are thinking of as you completed this survey?

Young Child (0-5)

School aged child (6-18)

Young Adult (18-25)

Adult (25 and older)

Other (please specify)

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* 7. What county in NC do you live in?

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* 8. Please indicate your relationship to the person (s) with autism you are thinking of as you responded to this survey.

Myself

Parent

Sibling

Grandparent

Other family member

Friend/neighbor/coworker

I'm a professional whose work involved persons with autism

Other (please specify)

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* 9. Thank you for your feedback. For more information on public policy issues and/or how you can be involved please contact Jennifer Mahan, jmahan@autismsociety-nc.org. If you would like ASNC to contact you directly, please leave your contact information (phone number or email) below. Please continue to monitor our E-newsletter and Policy Pulse for policy developments as the year progresses. You can sign up for the ASNC Policy Pulse on our website at http://autismsociety-nc.org/index.php/presets/public-policy. This response is kept confidential and internal to ASNC.