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Pediatric Rheumatic Diseases and Coronavirus
You are being asked to participate in a research project that will examine how patients and families of those with rheumatic diseases are affected by COVID19, including their medical care. At present, there is no information available to researchers on how rheumatic disease patients and their families experience an infectious disease pandemic. The researchers want to understand your experience in order to see how rheumatologists can help you and other with rheumatic diseases in the future.
-This survey is anonymous; we will not know your identity unless you voluntarily choose to provide us with your name and contact information at the end of the survey
-This survey should take approximately 5 minutes to complete.
-There are no benefits to you personally by taking this survey but it may help others in the future.
- If you complete this survey, you will be asked if you are interested in participating in an optional telephone interview
-Participation in this survey is voluntary as this survey is for research use.
-Completion of this survey indicates your consent to participate
The Biological Sciences Division Institutional Review Board of the University of Chicago has reviewed and approved this protocol. For questions about your rights as a research subject, please contact the University of Chicago BSD IRB at 773-702-6505.
Questions regarding the survey can be directed to the research investigator at cedens@peds.bsd.uchicago.edu
Thank you in advance for your time and commitment to this project which aims to advance care for all patients with rheumatic diseases in these difficult times.
