Skip to content
Canadian Lyme Treatment Experience survey
Canadian Lyme treatment experience survey
This is for Canadian Lyme patients only.
1.
How long did it take you to find a doctor willing to diagnose "Lyme/co infections?
immediately upon finding tick or tick bite
First doctor presented with Lyme symptoms
Within 30 days of onset of symptoms
Within 3-6 months
Within a year of looking for answers
1-2 yrs
2-4 yrs
Over 5 yrs
more than 10 years
2.
Who made your diagnosis?
Emergency or urgent care physician
Family or regular care doctor
Referred specialist (Not Infectious Disease)
Infectious Disease doctor
A ILADS registered Lyme literate doctor
Self proclaimed Lyme literate medical doctor
A ILADS trained naturopath
Other naturopathic specialist without Lyme specific training
Other (please specify)
*
3.
What other diagnoses have you received? Check all that apply
(Required.)
Lupus SLE
Hypothyroidism/ Hashimotos
Anxiety
Chronic fatigue syndrome CFS
Early onset Alzheimer's
Fibromyalgia
ADD or adhd
Depression
Somatization disorder aka "it's all in your head"
Learning disability
Inflammatory Bowel disease IBS/IBD
multiple sclerosis MS
None
Meniere's /Tinnitis/ vestibular neuritis
Rheumatoid Arthritis
Autism
Parkinson's or Parkinson's like tremors (restless leg, seizures, spasms)
AMYOTROPHIC LATERAL SCLEROSIS ALS
Other (please specify)
4.
Do you suffer with? Check all that apply
Arthritic joint pain
Headaches
Spasms/tremors
Seizures
Memory issues (long/short term)
Muscular and connective tissue pain/stiffness
Optical symptoms
Dizziness/vertigo/equilibrium disturbances
Cognitive difficulties, losing things, words, brain fog
Digestive problems upper/lower GI problems Gastroparesis
Hormonal/reproductive dysfunction/genital pain
Rashes and dermatological problems
Tingling/numbness/neuropathy
Sleep disturbances too much/too little insomnia
Mood swings emotional outbursts
Loss of appetite
Night/day sweats without cause
Fevers/chills
Other (please specify)
5.
What treatment have you tried? Check all that apply
1 Antibiotic alone
Different/multiple antibiotics/antiviral/antimalarials
Herbals/plant based
Homeopathy
Rifing
Acupuncture
Bee Venom therapy
Colloidal Silver
Cannabis in all forms(not including hemp)
Hemp products
Detoxing (infrared sauna/IV chelation)
Diet
probiotics
GcMaf
Stem cell
Hyperthermia
Essential oils
Other (please specify)
6.
Are you currently being treated in Canada?
Yes, but for other conditions
Yes, but only natural protocols
Yes, but out of pocket (no OHIP coverage for treatment)
No, I am travelling to the States for treatment
No, I am currently not treating by choice (remission/healthy)
No, I have no OHIP covered doctor
No, I cannot afford treatment
Other (please specify)
7.
How much money have you spent on treatment costs within the last 12 months? (Medication, doctor fees, travel, supplements, specialized services like acupuncture, etc.
0$-$9,999
$10,000-$20,000
$20,000-$40,000
$40.001-$50,000
$50,001-$75,000
$75,000+
Other (please specify)
8.
Who is in your support system?
I have family/friends who help regularily
I have family/friends who help when needed
I have family/friends that are emotionally supportive only
I have limited support from family/friends
I have very little support from family/friends
I have support from professionals only
I have no support from family/friends
Other (please specify)
9.
If barriers to receiving treatments were removed, what treatment would you want to do?
Hyperthermia
Stem cell
Inpatient care in a traditional medical centre
Inpatient integrative health care centre (naturals and traditional medicine)
Outpatient care with ILADS trained doctor
Outpatient care with ILADS trained naturopath
Care with alternative specialists
Rifing
Bee Venom Therapy
Cannabis
iVIG
None
Other (please specify)
10.
How long have you been struggling with Lyme and/or co infections?
Under 6 months
6 months- 1yr
1-2 yrs
2-3 yrs
3-4 yrs
4-5 yrs
5-10 yrs
10-25 yrs
25-50 yrs
Other (please specify)