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The Arc of Massachusetts Story Collection and Impact Tracker: 2026
1.
Have you already been affected by any federal proposals, cuts, Executive Orders, or any new policy changes under the current administration?
Yes
No
2.
If yes, please describe one specific way you or your family have already been affected?
Examples: a service reduction, loss of staff, increased costs, longer waitlists, etc.
If you need immediate assistance, please call or email The Arc: (781) 891-6270 or staff@arcmass.org.
3.
What services are you most worried about you or your family losing access to?
Medicaid (services such as Health Insurance/MassHealth, Day Programs, Adult Foster Care, Personal Care Attendants, and more)
Housing
Workforce Supports
Department of Education (such as funding set aside for special education)
Social Security
Supplemental Nutrition Assistance Program (SNAP)
Diversity, Equity, and Inclusion Initiatives
NIH Research Funding
Other (please specify)
4.
How have or would these changes affect your daily life, health, safety, or stability so far?
Please be as concrete as possible.
5.
Based on what you are experiencing now, what is the most significant challenge you are facing or preparing for next?
Contact Information
We intend to use your responses anonymously. Please share your information for our internal purposes only.
6.
Name
7.
Email Address
8.
City/Town
9.
Phone Number
Optional: Demographics
10.
What is your relationship to the individual with a disability/disabilities?
Self-advocate
Parent or guardian
Grandparent
Sibling
Other relative
Support person
Other
11.
What disability/disabilities do you/your loved one have?
Autism spectrum disorder
Intellectual disability
Developmental disability
Down syndrome
Cerebral palsy
Angelman syndrome
Fragile X syndrome
Pervasive Developmental Disorder Not Otherwise Specified (PDDNOS)
Prader-Willi syndrome
Fetal Alcohol Spectrum Disorder
Williams syndrome
Other
12.
What is your ethnicity?
American Indian or Alaska Native
Asian or Asian American
Black or African American
Hispanic or Latino
Middle Eastern or North African
Native Hawaiian or other Pacific Islander
White
Another race
*
13.
By submitting your comments and any multimedia, you consent to have your submissions shared by The Arc of Massachusetts in advocacy, marketing, campaigns, websites, social media, or other placements in perpetuity.
(Required.)
I consent