Welcome!
The responses to this anonymous survey will be used by the Cure HHT Research Network to identify research needs of HHT patients worldwide, then build strategic priorities for the next 3-5 years.
Please set aside 15-20 minutes to complete this survey. HHT patients over the age of 18 are eligible to participate in this survey. For patients under the age of 18 or patients unable to complete this survey themselves, a caregiver or friend may complete this survey on their behalf.
The data is collected by Cure HHT and will be used exclusively for the described purpose of the survey. Results will be aggregated and anonymous. Responses are confidential and will not be shared with third parties. Cure HHT will store your data exclusively for the time necessary for the project. Participants have the right to revoke their consent at any given time by contacting research@curehht.org. You can find further information on our privacy policy here.