Explanation of Research

Invitation to all caregivers caring for hospice patients.

Hello,

My name is Katie Caton and I am a doctor of nursing practice candidate at Old Dominion University in Norfolk, Virginia. I am conducting a research project exploring the relationship between hospice caregivers' perceptions of caregiver-provider communication and its effect on caregiver self-efficacy during end of life care. Below is an explanation of the research study.

THIS STUDY HAS BEEN APPROVED BY THE INSTITUTIONAL REVIEW BOARD OF OLD DOMINION UNIVERSITY.

Background
Family caregivers provide the care for many patients in hospice care. Caregivers carry out varied and challenging aspects of home care. Caregivers without health experience may question their competence and ability to provide care. This may affect their confidence in providing care to their loved one. Patients enrolled in hospice have reduced interactions with their healthcare provider. Communication between patient, caregiver, and provider is an important component of quality end of life care.

Purpose
The purpose of this study is to describe the relationship between caregivers’ perceptions of communication with the provider and how that impacts the caregivers’ confidence in providing care to their loved one. If you decide to participate, you will be asked to complete the survey that will take approximately 5 to 10 minutes. All information will be kept confidential. If you are 18 years of age or older, speak English, and you are the caregiver for a patient that is enrolled in hospice, then you may participate in the study.

Your participation in this study will provide information needed to enable better continuity of care for patients and caregivers throughout end of life. These results will allow interventions to be implemented by the healthcare provider to decrease any barriers of communication. This, in return, may facilitate improved and supportive care to be provided to the patient and caregiver during end of life.

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