Breast Cancer Survey of Families of People with Intellectual or Developmental Disabilities

Community Navigators Inc., a non-profit organization that advocates for people with intellectual or developmental disabilities, is collecting data on the experiences of women with I/DD who have breast cancer as part of an initiative to determine how best to provide support.  

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* 1. Do you have an intellectual or developmental disability, or are you a family member or guardian of someone with I/DD?

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* 2. Do you have, or do you know someone who has, both I/DD and breast cancer?

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* 3. If yes to the question above, has the person been referred to an advocate or someone to help her navigate the medical system?

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* 4. During doctors' visits, does the doctor speak directly to the patient or to the parent/guardian?

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* 5. Do you think it would it be helpful to have a list of trained breast cancer advocates for people with I/DD?

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* 6. Do you think medical personnel would benefit from training in how to treat patients with I/DD?

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* 7. Do you think people with I/DD would benefit from more support regarding preventative health care?

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* 8. Would you be willing to be contacted for more information if CNI has additional questions?

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* 9. Would you be interested in training on how to advocate on behalf of individuals with I/DD who have breast cancer?

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