Survey of Young Adults from HD families

This survey aims to collect information about the needs of those at risk, HD gene mutations carriers or those family members who had been at risk but do not carry the HD mutation. This does NOT include people who have unequivocal signs of HD. The data will be used to help the EHDN Young Adult Working Group (YAWG, www.euro-hd.net) focus some of their activities for the benefit of Young Adults from HD families.

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