My diagnosis - what it means for me. Survey

Introduction

Welcome to our Lifestyle Health Foundation "My Diagnosis" questionnaire, being run in partnership with the Person-Centred Neurosciences Society, who are running the related "My Neuro Diagnosis" survey.

The purpose of both surveys is to collect anonymous thoughts and data, that will encourage, support and shape the design and provision of more person-centred emotional health services.

This "My Diagnosis" survey is focused on questions relating to a diagnosis of non-neuro longterm conditions e.g. Type 2 diabetes, asthma, Crohn's disease, hay fever, PCOS.

If you have been diagnosed with more than one longterm condition, please begin the survey answering in relation to the diagnosis of that condition you consider to be the most impactful for you. You have the opportunity to answer the same questions, for a second and any further diagnoses, if you wish to.

Should one of those diagnoses not be covered by this survey, such as a neuro or mental health condition, you are invited to complete the P-CNS questionnaire (if you haven't already done so) at https://www.surveymonkey.co.uk/r/FRLSQDW

If you happen to have landed on this page after completing the related Person-Centred Neurosciences Society survey and have yet to press 'submit' at the end of that survey, please do so, before closing that web browser window.

1.Please write the name of the diagnosis in the following box.(Required.)

2.When did you receive the diagnosis (approx)?(Required.)

3.Please consider what the most impactful aspect of the diagnosis has been for you, and share what that is, in about 50 words or less.

4.Were you given the opportunity to share this information with your lead health professional/practitioner or team member?(Required.)

Yes

Don't remember

5.Using the following scale, please indicate how much you feel the diagnosis has become part of who you think you are (ie your identity)?(Required.)

6.Please indicate, using the following, how the diagnosis has impacted your thoughts and emotions (overall):(Required.)

7.Which of the following two questions would you choose to answer, in order for you to share thoughts and emotions.(Required.)

On a scale of 1 (best of health) to 10 (the worst of health) how well are you?

On a scale of 1 (best of health) to 10 (the worst of health) how ill are you?

8.To share anything more about your experience relating to this diagnosis, please use the following box.