GANSID SUPPORT IMPACT EVALUATION TOOL – INHERITED BLOOD DISORDERS ORGANIZATIONS

Section A: Organisational Profile

Thank you for being part of our work this year.

We want your input on the impact of GANSID’s support and where we should focus in 2026.

This survey is for individuals and organizations who received support from GANSID this year.
Examples include laptops, program support, training, or other direct assistance.

Your responses will help us understand what worked, what made a difference, and how we can improve future support.

The survey takes about 10 minutes to complete.

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* 1. Name of Organisation:

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* 2. Country

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* 3. Region

African Region (AFR)

Americas-North

Americas- Central and South

Caribbean

South-East Asian Region (SEAR)

European Region (EUR)

Eastern Mediterranean Region (EMR)

Western Pacific Region (WPR)

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* 4. Year Organisation Was Established:

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* 5. Type of Organisation (select one):

Patient support group

Advocacy organisation

NGO / CSO

Parent or caregiver group

Youth organisation

Other please specify)

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* 6. Size of Organisation. Please provide the number of individuals serving in the roles below:

Active members

Volunteers

Staff (if any)

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* 7. Main Focus Area (select all that apply)

Awareness & education

Advocacy & policy

Screening & early diagnosis

Caregiver support

Youth activities

Clinical support/referrals

Community outreach

Research collaboration

Other (please specify)