About the Diversity and Inclusion Conference Scholarship

Diversity and inclusion are essential pillars of our rare disease community and we want to ensure that all voices are heard and valued. Join us at the 2024 FPWR Family Conference as we celebrate our differences and unite in our shared journey towards empowerment, understanding, and furthering research for PWS and SYS.

This scholarship opportunity is open to BIPOC caregivers and/or caregivers facing financial hardships who wish to attend the 2024 FPWR Family Conference.

As a step towards creating a culture of inclusivity, we are thrilled to announce the Diversity and Inclusion Scholarship for the 2024 FPWR Family Conference - generously sponsored by Soleno Therapeutics. The Diversity and Inclusion Scholarship aims to promote participation from underrepresented or historically marginalized groups within our community. This year we are starting by offering up to 15 scholarships to BIPOC caregivers within our community. With these scholarships, we hope to facilitate the attendance of individuals who may face financial and systemic barriers to participation and have created programming to support the conference experience for those attendees:
  • Friday Morning Affinity Breakfast
  • Saturday Lunchtime Roundtable
  • Signal Group for during and post-conference communications

Scholarship Award Details:
Recipients will receive 1 complimentary conference registration and up to $750 to cover hotel accommodations and related travel costs.

Eligibility Criteria:
  • Caregivers within the PWS and SYS communities
  • Resides in the U.S.
  • 18 years or older
  • BIPOC / people of color OR financial hardship

Application Review Process:
The FPWR committee will review each application, considering factors such as eligibility and financial need. Preference will be given to applicants who demonstrate a genuine need for financial assistance. Applications will be anonymized and awardees will be selected by a committee.

Application and Timeline:
To apply for the Diversity and Inclusion Scholarship, please complete this application by June 28, 2024. Applicants will be notified of their application status on July 15, 2024.

T