“Fearless Physical Activity” Event Consultation Survey

The Canadian Congenital Heart Alliance has received project funding from the Ontario Sport and Recreation Communities Fund of the Ontario Ministry of Tourism, Culture and Sport. The goal of the “Fearless Physical Activity” project is to provide events for children, teens and adults with CHD and their families. The events will be designed to encourage people with CHD to adopt a healthy, active lifestyle that is appropriate to their CHD diagnosis. The events will also provide an opportunity to network with other CHD families and learn more about the CCHA.

Please share your thoughts on how we can make these events as helpful as possible for children, teens, and adults with CHD and their families.

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* 1. If CCHA organized an event where you could try out different types of physical activity and learn about how people with CHD can enjoy appropriate physical activities, would you be interested in attending?

Yes

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* 2. How long would you want the physical activity event to be?

2-3 hours (half day or evening)

4-6 hours (full day)

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* 3. CCHA is planning to host events in London, Toronto, Ottawa, Sudbury and Thunder Bay. Would you be able to get to one of these locations in order to attend a physical activity event with people with CHD and their families?

Yes

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* 4. If answered yes above, how long would it take you to get to the nearest event?

Less than 1 hour

1-2 hours

2+ hours

N/A

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* 5. When do you think CHILDREN with CHD and THEIR PARENT would be able to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

	1	2	3	4	5	6
Weekday afternoon/evening	Weekday afternoon/evening 1	Weekday afternoon/evening 2	Weekday afternoon/evening 3	Weekday afternoon/evening 4	Weekday afternoon/evening 5	Weekday afternoon/evening 6
Friday afternoon/evening	Friday afternoon/evening 1	Friday afternoon/evening 2	Friday afternoon/evening 3	Friday afternoon/evening 4	Friday afternoon/evening 5	Friday afternoon/evening 6
Saturday morning/afternoon	Saturday morning/afternoon 1	Saturday morning/afternoon 2	Saturday morning/afternoon 3	Saturday morning/afternoon 4	Saturday morning/afternoon 5	Saturday morning/afternoon 6
Saturday afternoon/evening	Saturday afternoon/evening 1	Saturday afternoon/evening 2	Saturday afternoon/evening 3	Saturday afternoon/evening 4	Saturday afternoon/evening 5	Saturday afternoon/evening 6
Sunday morning/afternoon	Sunday morning/afternoon 1	Sunday morning/afternoon 2	Sunday morning/afternoon 3	Sunday morning/afternoon 4	Sunday morning/afternoon 5	Sunday morning/afternoon 6
Sunday afternoon/evening	Sunday afternoon/evening 1	Sunday afternoon/evening 2	Sunday afternoon/evening 3	Sunday afternoon/evening 4	Sunday afternoon/evening 5	Sunday afternoon/evening 6

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* 6. When do you think TEENS with CHD would prefer to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

	1	2	3	4	5	6
Weekday afternoon/evening	Weekday afternoon/evening 1	Weekday afternoon/evening 2	Weekday afternoon/evening 3	Weekday afternoon/evening 4	Weekday afternoon/evening 5	Weekday afternoon/evening 6
Friday afternoon/evening	Friday afternoon/evening 1	Friday afternoon/evening 2	Friday afternoon/evening 3	Friday afternoon/evening 4	Friday afternoon/evening 5	Friday afternoon/evening 6
Saturday morning/afternoon	Saturday morning/afternoon 1	Saturday morning/afternoon 2	Saturday morning/afternoon 3	Saturday morning/afternoon 4	Saturday morning/afternoon 5	Saturday morning/afternoon 6
Saturday afternoon/evening	Saturday afternoon/evening 1	Saturday afternoon/evening 2	Saturday afternoon/evening 3	Saturday afternoon/evening 4	Saturday afternoon/evening 5	Saturday afternoon/evening 6
Sunday morning/afternoon	Sunday morning/afternoon 1	Sunday morning/afternoon 2	Sunday morning/afternoon 3	Sunday morning/afternoon 4	Sunday morning/afternoon 5	Sunday morning/afternoon 6
Sunday afternoon/evening	Sunday afternoon/evening 1	Sunday afternoon/evening 2	Sunday afternoon/evening 3	Sunday afternoon/evening 4	Sunday afternoon/evening 5	Sunday afternoon/evening 6

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* 7. When do you think ADULTS with CHD would prefer to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

	1	2	3	4	5	6
Weekday afternoon/evening	Weekday afternoon/evening 1	Weekday afternoon/evening 2	Weekday afternoon/evening 3	Weekday afternoon/evening 4	Weekday afternoon/evening 5	Weekday afternoon/evening 6
Friday afternoon/evening	Friday afternoon/evening 1	Friday afternoon/evening 2	Friday afternoon/evening 3	Friday afternoon/evening 4	Friday afternoon/evening 5	Friday afternoon/evening 6
Saturday morning/afternoon	Saturday morning/afternoon 1	Saturday morning/afternoon 2	Saturday morning/afternoon 3	Saturday morning/afternoon 4	Saturday morning/afternoon 5	Saturday morning/afternoon 6
Saturday afternoon/evening	Saturday afternoon/evening 1	Saturday afternoon/evening 2	Saturday afternoon/evening 3	Saturday afternoon/evening 4	Saturday afternoon/evening 5	Saturday afternoon/evening 6
Sunday morning/afternoon	Sunday morning/afternoon 1	Sunday morning/afternoon 2	Sunday morning/afternoon 3	Sunday morning/afternoon 4	Sunday morning/afternoon 5	Sunday morning/afternoon 6
Sunday afternoon/evening	Sunday afternoon/evening 1	Sunday afternoon/evening 2	Sunday afternoon/evening 3	Sunday afternoon/evening 4	Sunday afternoon/evening 5	Sunday afternoon/evening 6

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* 8. What types of activities do you think people with CHD would want to try at such an event? (check all that would be of interest to you)

New/ different activities that fewer people have tried: (Choose any/all or non)

Geocaching and Pokemon GO

Frisbee golf

croquet

beach ball volleyball

shuffle board

bocce ball

none of the above

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* 9. Sports (any/all or none)

soccer

softball

road or ice hockey

basketball

tennis

golf

none of the above

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* 10. Self-control activities (any/ all or none)

tai chi

yoga

relaxation exercises

none of the above

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* 11. Winter activities (any/ all or none)

curling

snow shoeing

ice skating

cross-country skiing

none of the above

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* 12. Individual/casual activities (any/all or none)

roller/ inline skating

skipping

biking

hiking

mini golf

swimming

bowling

none of the above

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* 13. Imaginative activities (any/all or none)

dancing

acting in a play

none of the above

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* 14. Any other activities that are not listed?

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* 15. Some people with CHD have told us that they have questions about physical activity. Which of the following questions do you think are most important for people with CHD:
(please rate the importance of each question):

	Not important	Somewhat important	Important	Very important
Why is physical activity important?	Why is physical activity important? Not important	Why is physical activity important? Somewhat important	Why is physical activity important? Important	Why is physical activity important? Very important
How much physical activity should I do?	How much physical activity should I do? Not important	How much physical activity should I do? Somewhat important	How much physical activity should I do? Important	How much physical activity should I do? Very important
How do I set realistic and achievable goals if I want to increase my physical activity?	How do I set realistic and achievable goals if I want to increase my physical activity? Not important	How do I set realistic and achievable goals if I want to increase my physical activity? Somewhat important	How do I set realistic and achievable goals if I want to increase my physical activity? Important	How do I set realistic and achievable goals if I want to increase my physical activity? Very important
What types of activity are appropriate for me?	What types of activity are appropriate for me? Not important	What types of activity are appropriate for me? Somewhat important	What types of activity are appropriate for me? Important	What types of activity are appropriate for me? Very important
What types of activities can I do on really cold days?	What types of activities can I do on really cold days? Not important	What types of activities can I do on really cold days? Somewhat important	What types of activities can I do on really cold days? Important	What types of activities can I do on really cold days? Very important
What types of activities can I do on really hot and humid days?	What types of activities can I do on really hot and humid days? Not important	What types of activities can I do on really hot and humid days? Somewhat important	What types of activities can I do on really hot and humid days? Important	What types of activities can I do on really hot and humid days? Very important
Where can I participate in physical activities in my community?	Where can I participate in physical activities in my community? Not important	Where can I participate in physical activities in my community? Somewhat important	Where can I participate in physical activities in my community? Important	Where can I participate in physical activities in my community? Very important
How can I make physical activities more enjoyable?	How can I make physical activities more enjoyable? Not important	How can I make physical activities more enjoyable? Somewhat important	How can I make physical activities more enjoyable? Important	How can I make physical activities more enjoyable? Very important
How much physical activity is too much for my heart?	How much physical activity is too much for my heart? Not important	How much physical activity is too much for my heart? Somewhat important	How much physical activity is too much for my heart? Important	How much physical activity is too much for my heart? Very important
Who can I talk to about my physical activity?	Who can I talk to about my physical activity? Not important	Who can I talk to about my physical activity? Somewhat important	Who can I talk to about my physical activity? Important	Who can I talk to about my physical activity? Very important
My doctor said I should avoid contact sports. I know ice hockey and football are out, but what about other activities with occasional or unintended contact?	My doctor said I should avoid contact sports. I know ice hockey and football are out, but what about other activities with occasional or unintended contact? Not important	My doctor said I should avoid contact sports. I know ice hockey and football are out, but what about other activities with occasional or unintended contact? Somewhat important	My doctor said I should avoid contact sports. I know ice hockey and football are out, but what about other activities with occasional or unintended contact? Important	My doctor said I should avoid contact sports. I know ice hockey and football are out, but what about other activities with occasional or unintended contact? Very important
My doctor said I should avoid competitive sports. I know travel and rep teams are out, but what about recreational teams or activity classes where teams are formed for a scrimmage?	My doctor said I should avoid competitive sports. I know travel and rep teams are out, but what about recreational teams or activity classes where teams are formed for a scrimmage? Not important	My doctor said I should avoid competitive sports. I know travel and rep teams are out, but what about recreational teams or activity classes where teams are formed for a scrimmage? Somewhat important	My doctor said I should avoid competitive sports. I know travel and rep teams are out, but what about recreational teams or activity classes where teams are formed for a scrimmage? Important	My doctor said I should avoid competitive sports. I know travel and rep teams are out, but what about recreational teams or activity classes where teams are formed for a scrimmage? Very important
The doc said I could do any activity as long as I could rest. My spouse/parent is always pushing me to get away from the screen & do a physical activity, but it makes me tired so I don’t want to do it. What’s the problem with not doing not doing PA?	The doc said I could do any activity as long as I could rest. My spouse/parent is always pushing me to get away from the screen & do a physical activity, but it makes me tired so I don’t want to do it. What’s the problem with not doing not doing PA? Not important	The doc said I could do any activity as long as I could rest. My spouse/parent is always pushing me to get away from the screen & do a physical activity, but it makes me tired so I don’t want to do it. What’s the problem with not doing not doing PA? Somewhat important	The doc said I could do any activity as long as I could rest. My spouse/parent is always pushing me to get away from the screen & do a physical activity, but it makes me tired so I don’t want to do it. What’s the problem with not doing not doing PA? Important	The doc said I could do any activity as long as I could rest. My spouse/parent is always pushing me to get away from the screen & do a physical activity, but it makes me tired so I don’t want to do it. What’s the problem with not doing not doing PA? Very important

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* 16. Are there any other questions that you have about physical activity?

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* 17. To help us better understand the survey answers we receive, please tell us a little bit about who you are:

How active do you feel that you are compared to other people the same age?

Less active

Same

More Active

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* 18. Are you:

Male

Female

Do not want to specify

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* 19. What age group are you in?

Child (12 years and younger)

Youth (13 to 20 years)

Adult (20 years and older);

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* 20. What is your interest in CHD?

I am an child with CHD (12 years and younger)

I am an youth with CHD (13 to 20 years)

I am an adult with CHD (20 years and older)

I am a parent of a child with CHD

I am a parent of a youth with CHD

I am a spouse/family member/friend of person with CHD

I am a CHD medical professional

Other (please specify)

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* 1. If CCHA organized an event where you could try out different types of physical activity and learn about how people with CHD can enjoy appropriate physical activities, would you be interested in attending?

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* 2. How long would you want the physical activity event to be?

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* 3. CCHA is planning to host events in London, Toronto, Ottawa, Sudbury and Thunder Bay. Would you be able to get to one of these locations in order to attend a physical activity event with people with CHD and their families?

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* 4. If answered yes above, how long would it take you to get to the nearest event?

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* 5. When do you think CHILDREN with CHD and THEIR PARENT would be able to attend a physical activity event? Rank these options from most (1) to least preferable (6).

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* 6. When do you think TEENS with CHD would prefer to attend a physical activity event?Rank these options from most (1) to least preferable (6).

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* 7. When do you think ADULTS with CHD would prefer to attend a physical activity event?Rank these options from most (1) to least preferable (6).

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* 8. What types of activities do you think people with CHD would want to try at such an event? (check all that would be of interest to you)New/ different activities that fewer people have tried: (Choose any/all or non)

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* 9. Sports (any/all or none)

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* 10. Self-control activities (any/ all or none)

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* 11. Winter activities (any/ all or none)

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* 12. Individual/casual activities (any/all or none)

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* 13. Imaginative activities (any/all or none)

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* 14. Any other activities that are not listed?

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* 15. Some people with CHD have told us that they have questions about physical activity. Which of the following questions do you think are most important for people with CHD: (please rate the importance of each question):

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* 16. Are there any other questions that you have about physical activity?

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* 17. To help us better understand the survey answers we receive, please tell us a little bit about who you are:How active do you feel that you are compared to other people the same age?

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* 18. Are you:

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* 19. What age group are you in?

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* 20. What is your interest in CHD?

* 5. When do you think CHILDREN with CHD and THEIR PARENT would be able to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

* 6. When do you think TEENS with CHD would prefer to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

* 7. When do you think ADULTS with CHD would prefer to attend a physical activity event?
Rank these options from most (1) to least preferable (6).

* 8. What types of activities do you think people with CHD would want to try at such an event? (check all that would be of interest to you)

New/ different activities that fewer people have tried: (Choose any/all or non)

* 15. Some people with CHD have told us that they have questions about physical activity. Which of the following questions do you think are most important for people with CHD:
(please rate the importance of each question):

* 17. To help us better understand the survey answers we receive, please tell us a little bit about who you are:

How active do you feel that you are compared to other people the same age?