What should be expected from a centre of excellence in parathyroid surgery ?

I would be very grateful if you can respond to the following questions based on your personal journey from reaching a diagnosis to having treatment for primary hyperparathyroidism (PHPT).

In an effort to improve the delivery of surgical care for primary hyperparathyroidism, there is a debate about criteria that would define a centre of excellence.  No such centres have been recognised so far as there is no mechanism in place for such a process. 

The following questions explore the views of patients affected by this condition.  The aim is to reach patients from many countries - please forward a link to this survey to anybody else you know to be suffering form this condition.
A summary of the information collected will be discussed with members of the European Society of Endocrine Surgeons during the plenary meeting in May 2024.

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1. Please name the country where you live

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2. Please name the patients’ group to whom you belong (if any)

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3. Your age group

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4. Please choose what would describe best your current situation

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5. In your experience with this condition, your decisions have been based primarily on

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6. BEFORE having parathyroid surgery, what factors are important ?

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7. What you believe to be the most important role of such a centre of excellence?

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8. In an ideal world, centres of excellence should treat

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9. From your personal perspective, what would be important for a surgeon working in a centre of excellence

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10. I expect that the surgeon who operates me should perform each year at least

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11. What you consider to be the most important changes/improvements that should be made to the care of patients with primary hyperparathyroidism ?

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12. Please use this section to leave any comments/views about surgery for primary hyperparathyroidism

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