This questionnaire has been created to gather information from those families and individuals who are willing to participate in the first European Registry for Tay-Sachs and Sandhoff Disease.
By answering the questions in the following pages you agree to have this information added to the registry.
A more detailed explanation and a consent form can be found on The CATS Foundation website by clicking on the consent form text below:
Consent form
If you are unsure about any of the questions please leave them blank and we will follow up with you at a later date for the answer.
If you have any questions regarding the registry then please contact The CATS Foundation at info@cats-foundation.org.
