Clinic Scenarios: Improving Awareness of PNH in Primary Care Settings – An In The Clinic Activity Evaluation (ID: i850a) Survey

1.How many years have you been in practice?(Required.)

≥21

11-20

1-10

<1

2.How many patients with PNH do you manage per month?(Required.)

1 to 5

6 to 10

11 to 20

I am not directly involved in patient care

3.Please select the option that best describes your practice setting:(Required.)

4.After participating in this activity, how confident are you in the management of patients with PNH in your practice?(Required.)

5.How familiar are you with the complement cascade and complement inhibitors?(Required.)

Very familiar

Somewhat familiar

Not familiar at all

6.Have you ever managed a patient with PNH? (Required.)

Yes, I currently do

Yes, one or two in the past

No, I never have

7.How committed are you to making changes in your practice based on your participation in this activity?(Required.)

If not committed or do not plan to make changes, please indicate reason

8.Which of the following best describes the impact of this activity on your performance?(Required.)

I gained new strategies/skills/information I can apply to my area of practice

I need more information before I can change my practice

My practice is already consistent with the information presented

This activity will not change my practice

9.Which new strategies/skills/information will you apply to your area of practice? Please select all that apply.(Required.)

Become better acquainted with signs and symptoms that indicate PNH

Consider DAT/Coombs testing in patients with low hemoglobin and hemoglobinuria

Become more familiar with the complement cascade and complement inhibitors that prevent hemolysis

Differentiate between C3 and C5 inhibitors for PNH

Carefully monitor patients on complement inhibitors for evidence of meningococcal infection

Ensure prophylactic vaccinations of patients with PNH

Coordinate monitoring of any patients with PNH with their hematologists

10.What barriers do you see to making changes in your practice? Please select all that apply.(Required.)

Lack of knowledge regarding evidence-based strategies

Lack of convincing evidence to warrant change

Lack of time/resources to consider change

Insurance, reimbursement, or legal issues

Conflicting guidelines or evidence

Patient compliance and/or patient resource barriers

Other (please specify)

14.If you indicated that you perceived commercial bias or influence, please describe:

15.Please list any clinical issues/problems within your scope of practice you would like to see addressed in future educational activities for PNH:

16.As a result of your participation in this activity, what is the one change you are most likely to implement in your practice?