Clinic Scenarios: Improving Awareness of PNH in Primary Care Settings – An In The Clinic Activity Evaluation (ID: i850a) Survey

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* 2. How many patients with PNH do you manage per month?

1 to 5

6 to 10

11 to 20

I am not directly involved in patient care

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* 3. Please select the option that best describes your practice setting:

Academic medical center

Community medical center

VA, DOD, or other government

Managed care

Research

Pharmaceutical industry

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* 4. After participating in this activity, how confident are you in the management of patients with PNH in your practice?

Very confident

Confident

Neutral

Little confidence

No confidence

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* 5. How familiar are you with the complement cascade and complement inhibitors?

Very familiar

Somewhat familiar

Not familiar at all

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* 6. Have you ever managed a patient with PNH?

Yes, I currently do

Yes, one or two in the past

No, I never have

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* 7. How committed are you to making changes in your practice based on your participation in this activity?

Very committed

Committed

Neutral

Not committed

I do not plan to make changes

If not committed or do not plan to make changes, please indicate reason

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* 8. Which of the following best describes the impact of this activity on your performance?

I gained new strategies/skills/information I can apply to my area of practice

I need more information before I can change my practice

My practice is already consistent with the information presented

This activity will not change my practice

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* 9. Which new strategies/skills/information will you apply to your area of practice? Please select all that apply.

Become better acquainted with signs and symptoms that indicate PNH

Consider DAT/Coombs testing in patients with low hemoglobin and hemoglobinuria

Become more familiar with the complement cascade and complement inhibitors that prevent hemolysis

Differentiate between C3 and C5 inhibitors for PNH

Carefully monitor patients on complement inhibitors for evidence of meningococcal infection

Ensure prophylactic vaccinations of patients with PNH

Coordinate monitoring of any patients with PNH with their hematologists

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* 10. What barriers do you see to making changes in your practice? Please select all that apply.

Lack of knowledge regarding evidence-based strategies

Lack of convincing evidence to warrant change

Lack of time/resources to consider change

Insurance, reimbursement, or legal issues

Conflicting guidelines or evidence

Patient compliance and/or patient resource barriers

Other (please specify)

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* 11. Please rate your level of agreement by checking the appropriate rating.

After participating in today’s activity, I am now better able to:

	Strongly agree	Agree	Neutral	Disagree	Strongly disagree
Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert	Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert Strongly agree	Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert Agree	Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert Neutral	Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert Disagree	Identify symptoms, disease manifestations, and assessment criteria that indicate the need for PNH testing and referral to a hematology expert Strongly disagree
Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors	Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors Strongly agree	Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors Agree	Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors Neutral	Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors Disagree	Describe the pathogenesis of PNH, the complement cascade, and complement inhibitors Strongly disagree
Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors	Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors Strongly agree	Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors Agree	Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors Neutral	Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors Disagree	Devise a strategy for monitoring patients with PNH who are being treated with complement inhibitors Strongly disagree

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* 12. Please rate your level of agreement by checking the appropriate rating.

Carlos M. de Castro III, MD effectively:

	Strongly agree	Agree	Neutral	Disagree	Strongly disagree
Presented the material	Presented the material Strongly agree	Presented the material Agree	Presented the material Neutral	Presented the material Disagree	Presented the material Strongly disagree
Avoided commercial bias	Avoided commercial bias Strongly agree	Avoided commercial bias Agree	Avoided commercial bias Neutral	Avoided commercial bias Disagree	Avoided commercial bias Strongly disagree

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* 13. The content presented:

	Strongly agree	Agree	Neutral	Disagree	Strongly disagree
Enhanced my current knowledge base	Enhanced my current knowledge base Strongly agree	Enhanced my current knowledge base Agree	Enhanced my current knowledge base Neutral	Enhanced my current knowledge base Disagree	Enhanced my current knowledge base Strongly disagree
Addressed my most pressing questions	Addressed my most pressing questions Strongly agree	Addressed my most pressing questions Agree	Addressed my most pressing questions Neutral	Addressed my most pressing questions Disagree	Addressed my most pressing questions Strongly disagree
Promoted improvements or quality in health care	Promoted improvements or quality in health care Strongly agree	Promoted improvements or quality in health care Agree	Promoted improvements or quality in health care Neutral	Promoted improvements or quality in health care Disagree	Promoted improvements or quality in health care Strongly disagree
Was scientifically rigorous and evidence based	Was scientifically rigorous and evidence based Strongly agree	Was scientifically rigorous and evidence based Agree	Was scientifically rigorous and evidence based Neutral	Was scientifically rigorous and evidence based Disagree	Was scientifically rigorous and evidence based Strongly disagree
Avoided commercial bias or influence	Avoided commercial bias or influence Strongly agree	Avoided commercial bias or influence Agree	Avoided commercial bias or influence Neutral	Avoided commercial bias or influence Disagree	Avoided commercial bias or influence Strongly disagree

Clinic Scenarios: Improving Awareness of PNH in Primary Care Settings – An In The Clinic Activity Evaluation (ID: i850a)

Question Title

* 1. How many years have you been in practice?

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* 2. How many patients with PNH do you manage per month?

Question Title

* 3. Please select the option that best describes your practice setting:

Question Title

* 4. After participating in this activity, how confident are you in the management of patients with PNH in your practice?

Question Title

* 5. How familiar are you with the complement cascade and complement inhibitors?

Question Title

* 6. Have you ever managed a patient with PNH?

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* 7. How committed are you to making changes in your practice based on your participation in this activity?

Question Title

* 8. Which of the following best describes the impact of this activity on your performance?

Question Title

* 9. Which new strategies/skills/information will you apply to your area of practice? Please select all that apply.

Question Title

* 10. What barriers do you see to making changes in your practice? Please select all that apply.

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* 11. Please rate your level of agreement by checking the appropriate rating.

After participating in today’s activity, I am now better able to:

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* 12. Please rate your level of agreement by checking the appropriate rating.

Carlos M. de Castro III, MD effectively:

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* 13. The content presented:

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* 14. If you indicated that you perceived commercial bias or influence, please describe:

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* 15. Please list any clinical issues/problems within your scope of practice you would like to see addressed in future educational activities for PNH:

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* 16. As a result of your participation in this activity, what is the one change you are most likely to implement in your practice?

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* 1. How many years have you been in practice?

Question Title

* 2. How many patients with PNH do you manage per month?

Question Title

* 3. Please select the option that best describes your practice setting:

Question Title

* 4. After participating in this activity, how confident are you in the management of patients with PNH in your practice?

Question Title

* 5. How familiar are you with the complement cascade and complement inhibitors?

Question Title

* 6. Have you ever managed a patient with PNH?

Question Title

* 7. How committed are you to making changes in your practice based on your participation in this activity?

Question Title

* 8. Which of the following best describes the impact of this activity on your performance?

Question Title

* 9. Which new strategies/skills/information will you apply to your area of practice? Please select all that apply.

Question Title

* 10. What barriers do you see to making changes in your practice? Please select all that apply.

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* 11. Please rate your level of agreement by checking the appropriate rating. After participating in today’s activity, I am now better able to:

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* 12. Please rate your level of agreement by checking the appropriate rating. Carlos M. de Castro III, MD effectively:

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* 13. The content presented:

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* 14. If you indicated that you perceived commercial bias or influence, please describe:

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* 15. Please list any clinical issues/problems within your scope of practice you would like to see addressed in future educational activities for PNH:

Question Title

* 16. As a result of your participation in this activity, what is the one change you are most likely to implement in your practice?

* 11. Please rate your level of agreement by checking the appropriate rating.

After participating in today’s activity, I am now better able to:

* 12. Please rate your level of agreement by checking the appropriate rating.

Carlos M. de Castro III, MD effectively: