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* 1. 1. What is your age?

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* 2. What is your gender & postcode?

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* 3. What is your relationship to Huntington's disease? (You can tick more than one box.)

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* 4. Are you a member of Huntington’s NSW & ACT?

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* 5. For each of these support activities by Huntington's NSW & ACT, please indicate its importance to you

  Not important Somewhat important Very important Extremely important
Providing information about HD
Providing information about caring for someone with HD
Providing information about accessing health services for HD
Educating health care professionals about HD
Running social (lunch) clubs
Running an annual holiday camp
Providing support for young people
Providing localised family support
Running family support groups
Running carer support groups
Lobbying governments for better health, disability, aged care or other services

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* 6. How would you like Huntington's NSW & ACT to communicate with you? (Tick more than one box if you want.)

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* 7. Are you or a family member using National Disability Insurance Scheme (NDIS) services?
(NOTE: Huntington's NSW & ACT is setting up an NDIS coordination of support service.)

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* 8. ONLY if you answered yes to Q. 7:
Are you happy with the NDIS services you or your family member receive?

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* 9. ONLY if you answered yes to Q. 8
Are you using or have you used NDIS coordination of support?

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* 10. Is there anything else you'd like to tell us?

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