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Welcome to the Wescoe Foundation Needs Assessment Survey
"Bridging the Gap: Identifying Gaps in Connecting the Pulmonary Fibrosis Community to Support Groups"

At the Wescoe Foundation for Pulmonary Fibrosis, our mission is to connect individuals and families impacted by pulmonary fibrosis (PF) or interstitial lung disease (ILD) with meaningful support, resources, and community. Whether you are a patient, care partner, healthcare provider, or advocate, your insights will help us better understand how to share information about our support group offerings and reach those who need it most. This survey takes just a few minutes to complete, and your feedback is invaluable. Helping us better support those impacted by PF or ILD.
1.Which of the following best describes your role?(Required.)
2.Zip code (primary residence or practice):(Required.)
3.For patients: How long have you been living with PF or ILD?
4.For healthcare professionals: How long have you been involved in care for or working with the PF or ILD community?
5.For healthcare professionals: Approximately how many patients with PF or ILD do you provide medical care for annually?
6.How do you currently share or receive information about PF or ILD support resources? (Check all that apply)(Required.)
7.For patients/care partners: Have you been made aware of support group opportunities by a healthcare provider?
8.How did you first hear about PF or ILD support groups? (Select all that apply)(Required.)
9.For healthcare professionals: How do you usually share information about support groups with patients / care partners? (Select all that apply)
10.For patients/care partners: Have you ever participated in a support group?
11.What days/times are most convenient for participating in a support group? (Check all that apply)
12.What barriers make it difficult to attend a support group? (Check all that apply)
13.For healthcare professionals: What method(s) would you prefer to use to share Wescoe Foundation support group information with patients/care partners? (Check all that apply)
14.How interested are you in receiving support group promotional materials from the Wescoe Foundation?(Required.)
Very interested
Interested
Neutral
Not interested
15.What topics or types of support would you (or your patients) find most helpful in a support group? (Check all that apply)(Required.)
16.How do you think awareness of Wescoe Foundation support services could be improved?
17.Would you like to receive follow-up information or materials from the Wescoe Foundation?
18.Is there anything else you would like us to know?
Thank you for helping us support our mission to support, educate, advocacy, and resources for patients living with Idiopathic Pulmonary Fibrosis (IPF) as well as their care partners and families, to sustain the highest possible quality of life. For more information, please visit the Wescoe Foundation.