Invitation to participate in type 2 diabetes research

Adults who have been diagnosed with Type 2 Diabetes Mellitus are invited to participate in an online study by Mandy Cassimatis and Madeline Stone. The study, titled ‘Psychosocial Barriers to Type 2 Diabetes Self-care’ is aimed to explore potential social and psychological barriers to diabetes self-management (self-care) in Australian adults with Type 2 Diabetes.

To take part in the study, you must be aged at least 18 years, living in Australia, and have a diagnosis of Type 2 diabetes. If you agree to participate in the study, you will be asked to complete an online questionnaire. The questionnaire asks about information on your background (e.g., age, gender), mood, social experiences related to living with type 2 diabetes, how you manage type 2 diabetes, and how confident you are in managing type 2 diabetes. The questionnaire will take approximately 20 minutes of your time.

Your participation in this study is voluntary. Refusal to participate requires no explanation and has no consequences. Clicking on the checkbox at the bottom of this form and completion of the questionnaire indicates your consent to participate. You are free to withdraw your consent at any time during the study without consequence, and your participation in the research study will immediately end and any information obtained from it will not be used. The exception to this is if you withdraw after your information has been combined. The combined data is not able to be individually identified therefore it cannot be discounted, however you may still withdraw your consent to participate. You are also free to choose not to answer any questions on the questionnaire without consequence. By participating you consent to your combined results being used for research purposes, which may include reporting in scientific and academic journals.

Data will be collected online and will not require you to provide any personally identifying information, e.g., name. This will ensure you remain anonymous. This data will be stored electronically and will be password protected. The data for this study may be added to data of future studies by the researchers named on this form. However, your responses will remain unidentifiable.

Although this study is considered low risk, we understand that some questions may cause participants to feel some discomfort or distress. If distress or discomfort are experienced, please seek support via Lifeline (ph: 13 11 14 or www.lifeline.org.au) or Beyondblue (ph: 1300 224 636 or www.beyondblue.org.au). For any diabetes-related issues, we recommend that participants contact Diabetes Australia (ph: 1300 136 588 or www.diabetesaustralia.com.au ), or your state/local diabetes organisation (Diabetes Victoria – ph 1300 437 386, Diabetes Queensland – ph: 1800 177 055, Diabetes WA – ph: 1300 001 880, or Diabetes NSW & ACT, 1300 342 238). We would also like to remind participants of their right to withdraw from the study at any time without consequence.

If you have any questions or comments regarding this study, or if you would like to receive a written summary of the results via email at the end of the study, please feel free to contact Dr. Mandy Cassimatis (details provided below), who will send you a written summary in July 2019.

Please consent to take part in this research by reading the following information and clicking on the 'Next' button at the bottom of the page.
I hereby consent to participate as a subject in the above research study. 

I understand that:

  • all information I provide (including questionnaires) will be treated with the strictest confidence and data will be unidentifiable
  • Combined results will be used for research purposes and may be reported in scientific and academic journals.
  • I am aware that results from this study may be used in future research but will be and will remain completely confidential and unidentifiable
  • I am free to withdraw my consent at any time during the study in which event my participation in the research study will immediately cease and information/data obtained from it will not be used.
  • I understand the exception to this is if I withdraw after the information has been combined- it is unable to be individually identified - so from this point it is not possible to withdraw my information/data, although I may still withdraw my consent to participate.
  • I am over the age of 18 years.
  • I have a diagnosis of type 2 diabetes.

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