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AYA Sarcoma Experience Survey
1.
What resources or information would help you with your sarcoma journey?
Information to help you understand your sarcoma diagnosis
Mental health support
Survivorship care
Connecting with others your age in the sarcoma community
Financial support resources
Other (please specify)
2.
How often do you think about the following?
Often
Sometimes
Never
Dating and sarcoma
Often
Sometimes
Never
Family relationships
Often
Sometimes
Never
Friendships in the sarcoma/cancer community
Often
Sometimes
Never
Friendships outside the sarcoma/cancer community
Often
Sometimes
Never
Survivors guilt
Often
Sometimes
Never
Anxiety / fear of sarcoma reoccurrence
Often
Sometimes
Never
Scanxiety
Often
Sometimes
Never
Adjusting to daily life after you've been diagnosed with sarcoma
Often
Sometimes
Never
Managing side effects
Often
Sometimes
Never
Navigating your career / school during a sarcoma diagnosis
Often
Sometimes
Never
Insurance
Often
Sometimes
Never
Finances
Often
Sometimes
Never
Other (please specify)
3.
What is the most challenging part about being an AYA diagnosed with sarcoma?
4.
What should others know about the experience of being an AYA diagnosed with sarcoma?
