We are conducting this survey to better understand who is currently involved in delivering care and treatment for people living with Friedreich ataxia across all provinces and territories. As new treatment options become available, this information is critical to identify where care is being delivered, who is responsible for clinical management and treatment decisions, and where Muscular Dystrophy Canada can support through additional knowledge, training, coordination, or system supports.

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* 1. Which of the following best describes you?

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* 2. Are you currently receiving treatment (Omaveloxolone/Skyclarys) for FA?

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* 3. What province or territory do you currently live in?

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* 4. What are the first three digits of your postal code?

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* 5. Which healthcare providers have been involved in your Friedreich ataxia care within the past two years? (Select all that apply)

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* 6. Who is the main healthcare provider that leads or coordinates your Friedreich ataxia care? (For example: the doctor/clinician you rely on most for FA-related decisions)

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* 7. What is this main provider’s role/specialty

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* 8. How often do you see this main healthcare provider for FA-related care?

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* 9. How far do you typically travel for specialized FA care?

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* 10. What is the name of the clinic, hospital, or care centre that this provider is primarily affiliated with?

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* 11. How confident are you that your main healthcare provider is knowledgeable about FA, including approved treatments, clinical trials and treatments that are in development for FA?

Not confident at all Moderately confident Very confident
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i We adjusted the number you entered based on the slider’s scale.

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* 12. Please rate your satisfaction with the quality of care you receive for Friedreich ataxia

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