Equipment User Survey

MND Scotland Equipment Loan Service Review.

100% of survey complete.

Please complete this survey ONLY if you or a loved one has been affected by MND within the last five years and the person affected lives or lived in Scotland.

Question Title

* 1. What is the first part of the postcode of the person affected by MND? (Or the town if you don't know the postcode.)

Question Title

* 2. Please provide the name of the Care Team Member allocated to the person affected by MND, or the hospital where the diagnosis was carried out.

Question Title

* 3. MND can be a very individual disease in that there are a range of possible symptoms and while most people have some of the symptoms and problems, few people have them all. Which of the following areas are, or were affected, for the person with MND? (Select all those that apply.)

Lower leg muscles

Upper leg muscles

Tummy muscles

Back muscles

Upper arm muscles

Lower arm muscles

Hand muscles

Breathing muscles

Tongue

Lips

Jaw muscles

Swallowing

Speaking

Excessive runny saliva

Thick mucus gumming up the mouth

Behavioural changes or difficulties finding words

Question Title

* 4. When different areas are affected this can cause increasing difficulties in several different areas of everyday living. For example:-

Leg muscles - Getting up from sitting (including from the toilet), walking, standing, dressing and moving or turning in bed.

Arm and hand muscles - Dressing, writing and typing, handling cutlery, toileting, personal hygiene, lifting or carrying

For each of the areas listed below please tell us about any equipment you were loaned to help with this problem, e.g. "The OT got us a motorised riser recliner armchair."

Getting up from sitting

Dressing

Toileting

Walking, standing

Moving or turning in bed.

Writing or typing

Handling cutlery

Personal hygiene (Washing, etc)

Lifting or carrying

Lack of support while sitting,

Chewing

Speaking/communicating

Lack of head control

Forming a seal with the lips while drinking

Choking while eating or drinking

Drooling /Removing saliva if unable to swallow

Thick mucus gumming up the mouth

Poor sleep due to low oxygen levels in the blood,

Breathlessness

Question Title

* 5. Did you borrow any equipment from MND Scotland? If so, please list this equipment and approximately how long you had it.

Question Title

* 6. Please tell us if any of the equipment you listed in question 5 was later replaced by equipment loaned by the NHS or social work department.

Question Title

* 7. Please tell us what you thought of the equipment you borrowed from MND Scotland.

The equipment was in good condition when supplied.

The equipment was in poor condition when supplied

The equipment was modern.

The equipment was old fashioned.

The equipment didn't work or broke down.

The equipment was a great help.

Other (please specify)

Question Title

* 8. Sometimes equipment can become unusable due to symptoms becoming worse and may need to be replaced by something else. Please list here any equipment that became unusable due to disease progression. If any replacement equipment was supplied in its place please tell us about that. (If nothing was supplied to replace the equipment, leave the box labelled "Replacement supplied" blank.)

Equipment that became redundant

Replacement supplied (if any)

Equipment that became redundant

Replacement supplied (if any)

Equipment that became redundant

Replacement supplied (if any)

Question Title

* 9. Is there any equipment that you later found out about that you think may have helped, but you were not aware of it at the time?

Question Title

* 10. Which pieces of equipment do you think have been most useful?

Thank you for completing this survey. We hope future users of our services will benefit from the time you have given to replying.