1. Introduction

 
5% of survey complete.

Dear Member,

This survey aims to evaluate the attitudes, beliefs and concerns of people with MS, their carers, relatives and healthcare team, about end of life issues such as assisted suicide, low mood and advance decisions. Such issues have recently received considerable media attention, such as Debbie Purdy’s campaign to clarify the law on assisted suicide. This survey has been designed by Barts and The London Hospital NHS Trust in association with the MS Society, with the kind advice of a number of people with MS. The purpose of this collaboration is to provide evidence that will lead to better patient education and management in the future.

Most people with MS will live decades after diagnosis. As a result, it is not right to consider MS terminal in the same way that, for example, certain aggressive cancers are considered terminal. But it is a serious long-term condition that can, in severe cases, lead to death.

It is quite understandable if you feel that some or all of the issues covered in this survey are NOT applicable to you. Nevertheless these issues need to be addressed and we would very much value your opinion!

You do not have to complete the survey and can skip questions or stop at any time.

* 1. Disclaimer

Although care has been taken in preparing this survey, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, and the Multiple Sclerosis Society of Great Britain and Northern Ireland cannot be held responsible for any errors or omissions in the survey and accepts no liability whatsoever for any consequences arising from completing this survey. The University and the MS Society reserves the right to make changes to or take down this survey, or remove or alter any content at any time without notice. The information collected in relation to this survey will only be used for the purposes stated. No third party will be given access to this information.

Professor Gavin Giovannoni and Dr Morag Brothwell welcome comments and suggestions about this survey, which can be sent to them using the feedback field at the end of this survey. Anyone wishing to contact them directly can do so using their contact details below.

Gavin Giovannoni and Morag Brothwell, Neuroscience & Trauma Centre, Blizard Institute of Cell and Molecular Science, 4 Newark Street, Whitechapel, LONDON E1 2AT

Tel: +44 20 7377 7472 / Fax: +44 20 7377 7033 / Email: g.giovannoni@qmul.ac.uk or moragbrothwell@hotmail.com

I have read and understand the disclaimer and wish to proceed with this survey.

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