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Have your say! Help shape the future of eczema research.

Eczema Priority Setting Partnership (PSP)

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What questions do you have about atopic eczema and eczema treatments? What more do you want to know?

Eczema UK (formerly National Eczema Society) is working with the James Lind Alliance and others to identity the most important unanswered questions about atopic eczema. Too often, research misses what matters most to people living with atopic eczema and to medical professionals. This survey is your opportunity to shape future atopic eczema research priorities.

We want to hear from as many people as possible with experience of atopic eczema. For example, people living with atopic eczema, parents and carers, and healthcare professionals caring for patients with atopic eczema. Your experience and views will help decide the Top 10 priorities for atopic eczema research in the UK.

The survey takes around 5–10 minutes and is anonymous. There are no right or wrong answers. We want to hear what matters most to you, wherever you are in the UK.

In this Priority Setting Partnership (PSP) survey we are focusing on questions about atopic eczema (also called atopic dermatitis), which is the most common form of eczema. If you are unsure what this means, you can find more information here.
1.Which best describes you? (select all that apply)(Required.)
2.Have you or the person you care for been diagnosed with atopic eczema?(Required.)
3.If you are a healthcare professional, please select your role:
4.Please tell us about your priorities for atopic eczema research.

These might include questions about:
  • Causes
  • Prevention
  • Managing flare ups
  • Treatments
  • Long-term effects
  • Skin of colour
  • Emotional and mental health impact
  • Diet or lifestyle
  • Access to medical care
  • Topical steroid withdrawal (TSW)
  • Impact on families
  • Anything else that matters to you
You can write in everyday language — it does not need to sound scientific.

What are the questions about atopic eczema you want researchers to answer? Please provide your responses in the box below and if possible, try to write them as a question. If you have more than one, please number and list them.(Required.)
5.What is your gender?(Required.)
6.What is your age?(Required.)
7.Where do you live (which UK region)?(Required.)
8.How would you describe your ethnicity?(Required.)
What happens next:
  • We will review and group all the survey responses, to identity the most popular questions.
  • Check the responses against existing medical evidence to identify research gaps.
  • Work together with patients, parents, carers and healthcare professionals to agree the Top 10 atopic eczema research priorities.
Consent and Data Use
By submitting this survey, you agree that your responses will be used anonymously by Eczema UK for the Eczema Priority Setting Partnership. Your responses will be stored securely by Eczema UK and used only for the purposes of this Priority Setting Partnership. You will not be identifiable in any analysis or reports.

If you are under 18 years old, please discuss taking part with a parent, guardian, or trusted adult before completing the survey.
Thank you for completing the Eczema PSP survey.

If you would like to receive updates, take part in the second survey, or be considered for future involvement opportunities, please complete our separate contact form here:

https://www.surveymonkey.com/r/stay_involved

Your contact details will be stored separately from your survey responses to help protect your anonymity.
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