5% of survey complete.
A carer, or caregiver, is someone who takes regular, ongoing care of a family member or friend who needs support. A carer can be anyone of any age and is generally unpaid. Many carers do not like the term; they see their role as a natural extension of the relationship they have with someone important to them. It is therefore not surprising that a large number of carers are not identified as such and that what they do is often not fully appreciated.

This pan-European survey is aimed at anybody who looks after and provides ongoing care to a family member, sibling, partner or friend who is living with Parkinson’s disease. Whether you live together with the person with Parkinson’s you care for or not, whether your carer role is continuous or occasional, you will be eligible to complete this survey and your insight will be very important to our research.

The aim of this survey is to highlight the physical, financial and emotional challenges facing carers of people with Parkinson's across Europe. We want to demonstrate the individual and societal cost consequences that caring has on individuals – consequences that are too often ignored by governments and decision makers across Europe. The survey results will help the European Parkinson's Disease Association (EPDA) develop important advocacy tools to campaign for better and more timely support services aimed at carers of people with Parkinson’s.

We expect it will take you 15 to 20 minutes to complete the survey. Your answers will remain strictly anonymous.

Thank you very much for taking part in this important research project.

This data collection project is supported by our partner Air Liquide Healthcare

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