The ELF patient organisation network aims to:

• help organisations find others in their country and disease area
• raise public and professional awareness of patient organisations and their activities
• help professionals, researchers and policy makers find patient organisations to work with
• provide opportunities for you and your members to get involved in research and advocacy

The information provided in this form will be included on a directory on the ELF website.

If you completed a previous version of this form, please do still take part to make sure your details are up to date.

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* 1. By completing this form, I agree that all data provided may be used (saved, stored, processed, transmitted and deleted) in compliance with the European Lung Foundation Privacy Policy. 

I also agree that data provided may be included in a directory on the ELF website.

If you have any queries, please contact: info@europeanlung.org.

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* 2. Name of organisation and country

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* 3. Person completing survey and position within organisation

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* 4. Contact email for future communications

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* 5. Web address for your website (if you have one)

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* 6. Which respiratory diseases do you focus on?

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* 7. What activities is your organisation involved in? Tick as many as apply.

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* 8. Would you be interested in working with ELF and ERS? Please tick any areas that interest you.

If you have any further questions or comments, please contact Courtney Coleman, ELF Patient Involvement and Engagement (courtney.coleman@europeanlung.org).

Thank you for completing the survey. To support patient involvement across Europe, ELF have launched the European Patient Ambassador Programme (EPAP), an online learning programme to support and empower patients to get involved in healthcare. To find out more go to www.EPAPonline.eu or email ELF at epap@europeanlung.org.

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