5 years ago, the European Haemophilia Consortium (EHC) launched “European Inhibitor Network” programme with an aim to improve the treatment and care, as well as to increase the quality of life, of people with haemophilia who have inhibitors. To design this programme in a way that would correspond the actual needs of the people with inhibitors and their caregivers, the EHC carried out a survey to see what the challenges and needs individuals with haemophilia who have inhibitors, their families and their other caregivers are facing.
Now, five years later we would like to re-launch the same survey to see whether any changes have occurred. Please help us assess the situation by answering this short survey. Thank you!