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What services do people with axial SpA living in London need and value?

We wanted to understand what people living in London with axial SpA need and value from their rheumatology service. We will collate the results anonymously and present your views at a meeting of rheumatologists in London. We will also use the results to understand what additional services NASS could be offering in London.

Thank you in advance for your time.
1.Which of the following have you received from NHS healthcare professionals since getting your diagnosis?
2.Overall, how satisfied were you with each of the services you received?
Not at all satisfied
Not very satisfied
Neither satisfied nor dissatisfied
Quite satisfied
Very satisfied
N/A
An initial face to face NHS physio appointment(s) tailored specifically to axial SpA
Information about physical exercises tailored specifically to axial SpA
Access (e.g. phone support) to a specialist rheumatology nurse
Information provided about the condition and its likely progression
Information provided about your likely course of treatment
Information about the medication prescribed e.g. side effects
Information on well-being / coping with my diagnosis
3.Here are some things that other people have said are important when you have an axial SpA diagnosis. For each of these please tell us how important you think this is.
Not at all important
Not very important
Neither important nor unimportant
Quite important
Very important
A detailed explanation from a doctor about treatment plans for different stages of the condition
Having someone to go back to with questions
Information about how to manage a flare-up
Information about physical exercises that might help with axial SpA
Information about possible side effects of medication to treat axial SpA
Advice on how to manage pain levels
Advice about how to manage impact of axial SpA on day to day life
4.We’d like to understand how well you feel you manage your condition outside your medical appointments. Overall, how well do you feel you are self managing your axial SpA?
5.Please choose up to three of the most useful ways in which your doctor and health professionals could support you to self manage your axial SpA
6.Which one of the following statements best fits you and your attitude to managing your axial SpA on a day to day basis? Don’t worry if none of them fit exactly – just tell us which one comes closest to your attitude.
7.And what help and support would you like to have from NASS?
8.Is there anything else you'd like to add about the issues you've encountered or the help you'd like to see available?
9.And now we just want to ask a few more questions about you. How do you identify?
10.And what age group do you fall into?
11.Which of the following best describes your ethnic group?
12.Which best describes your current employment status?
13.And what area of London do you live in?