What Do You Want in a Book About Stress in Caregiving Parents?

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* 1. Please rank the list of possible topics from 1 to 9 with 9 being most important to 1 being least important.

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* 2. Which of these should be represented in parent stories? Check any that are important to you.

Parents caring for children of different ages (birth–3, 4-12, 13-18, and adult children)

Parents of children with a variety of disabilities and special needs (medical, behavioral, developmental, etc.)

Parents of children with terminal diagnoses

Single parents

Married couples

Step parents

Cultural diversity

Socio-economic diversity

Parents who practice a faith tradition

Parents who don't practice a faith tradition

Other (please specify)

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* 3. Which of the following should be included regarding the effects of stress on mental and physical health? Check any that are important to you.

Physical symptoms of stress

Mental health symptoms of stress

Stress-related physical conditions

Stress-related mental conditions

When to see a medical doctor

When to see a mental health professional

Other (please specify)

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* 4. What stressful situations unique to caregiving should be addressed? Check any that are important to you?

Insurance issues

Government funding (SSI, waivers, special program funding, etc.)

Educational services (IEPs, 504 plans, job training, higher education, etc.)

Special needs trusts and ABLE accounts

Employment and housing for adult children

Negotiating the physical health care system

Negotiating the mental health care system

Other (please specify)

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* 5. What kinds of self-care suggestions should be featured? Check any that are important to you.

Simple

Inexpensive

Creative

Quick

Relaxing

One and done

Reusable

No self-care ideas

Other (please specify)

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* 6. What kinds of resources should be included? Check any you feel comfortable accessing.

Books

Radio program

Television programs

Podcasts

Websites

Online forums

Organizations

Other (please specify)

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* 7. What kinds of faith-based resources should be included? Check any of importance to you.

Prayer and meditation

Bible study

Common caregiver questions addressed from a faith perspective

Faith-based resource lists

Support groups

Other (please specify)

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* 8. What relationships should be addressed in a section about stress in caregiving families? Check any that are important to you.

Relationship with spouse or partner

Relationship with child(rem) with disabilities or special needs

Relationship with typical children in the family

Relationships with extended family members

Relationships with friends

Relationships with faith community members

Relationships with professionals who work with your child (medical, mental health, school, etc.)

Other (please specify)

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* 9. What job-related issues should be addressed? Check any that are important to you.

Balancing work and family

Dealing with co-workers

Dealing with supervisors, managers, or administrators

Finding childcare

Other (please specify)

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* 10. What kinds of practical household strategies should be addressed? Check any that are important to you.

Meal planning

Household chores

Finances

Errands

Holidays

Other (please specify)

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* 11. What topics or issues not mentioned in this survey should be included?

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* 12. If you are willing to be contacted by Jolene Philo, creator of this survey, what is your name and email address? They will not be used for any other purpose.

Name

Email Address