Supporting the people close to stroke survivors Stroke affects the whole family, not just the survivor. At Different Strokes we want to support partners, family and friends better, and we would value your help. The survey takes around 10 to 15 minutes. Your answers are confidential and anonymous unless you choose to share your details at the end. Question Title * 1. What is your relationship to the stroke survivor? (Required.) Husband, wife or partner Parent of an adult survivor Parent of a child survivor Adult son or daughter Brother or sister Other family member Friend Neighbour Paid Carer Other (please specify) Question Title * 2. Some people don’t identify with the term ‘carer’. Do you use a term such as a ‘carer’, ‘caregiver’ or ‘unpaid carer’ to describe your role in supporting your loved one following their stroke? (Required.) Yes No Sometimes Never Question Title * 3. If we had to use one word/phrase to describe the role of caring for a relative, what do you think it should be? Carer Caregiver Unpaid carer Family member with caring responsibilities Other (please specify) Question Title * 4. Do you live with the person who had a stroke? (Required.) Yes No Question Title * 5. What is your age range? (Required.) Under 18 18–24 25–34 35–44 45–54 55–64 65–74 75 or over Prefer not to say Question Title * 6. How much has the stroke affected each of the following? (Required.) Not at all A little Quite a lot A great deal Your emotional wellbeing Your emotional wellbeing Not at all Your emotional wellbeing A little Your emotional wellbeing Quite a lot Your emotional wellbeing A great deal Your relationship with the survivor Your relationship with the survivor Not at all Your relationship with the survivor A little Your relationship with the survivor Quite a lot Your relationship with the survivor A great deal Your work Your work Not at all Your work A little Your work Quite a lot Your work A great deal Your finances Your finances Not at all Your finances A little Your finances Quite a lot Your finances A great deal Your social life and friendships Your social life and friendships Not at all Your social life and friendships A little Your social life and friendships Quite a lot Your social life and friendships A great deal Your own health Your own health Not at all Your own health A little Your own health Quite a lot Your own health A great deal Question Title * 7. Have you felt isolated, or that people don't understand? (Required.) Never Sometimes Often Always Never Sometimes Often Always Question Title * 8. What has been the hardest part for you? Question Title * 9. Have you received support for yourself, separate from the survivor? If yes, where from? (Required.) GP NHS stroke team Stroke Association Different Strokes Carers UK Local carers centre Headway Citizens Advice Online forums Facebook groups Faith or community groups Support from my employer Family or friends No, I haven’t received any support Prefer not to say Other (please specify) Question Title * 10. Have any charities, services or organisations been particularly helpful to you as a partner, family member or friend? Which ones, and what made them helpful? Question Title * 11. Which types of support would you find helpful?Please tick all that apply. (Required.) A private online support group for carers, available 24/7 One-to-one support from someone with lived experience Information, guides and booklets Practical advice on benefits, work and finances Counselling or emotional support Signposting to other support services Other (please specify) Question Title * 12. What do you think would genuinely help you right now? Question Title * 13. We create booklets and communications with input from people with lived experience. What is the biggest thing you have learnt, or wish someone had told you when your loved one had a stroke? Question Title * 14. Are you happy for Different Strokes to use your response to question 13 for future communications, anonymously? (Required.) I'm happy for Different Strokes to use my words in future communications, anonymously. No Question Title * 15. Our new booklets for family, friends and carers are coming soon. Would you like us to email you when it is ready? (Required.) Yes No Question Title * 16. Would you like to be part of a focus group on this in future, if we can go ahead with more work in this area? (Required.) Yes No Maybe Contact details (all optional) If you would like us to contact you, please provide your details below. Question Title * 17. Full name: Question Title * 18. Email Address: Question Title * 19. Your Address (optional): Question Title * 20. How can we communicate with you (Please tick all that apply): (Required.) Email only Post only Email and/or post None of the above Done