You are invited to take part in a research survey regarding your experience of living with a recent diagnosis of autosomal dominant retinitis pigmentosa. Autosomal dominant (AD) refers to the inheritance pattern that certain types of retinitis pigmentosa (RP) show in families. This survey is primarily for people with the AD types. However, if you are not aware of which inheritance pattern type you have, we still welcome your participation. This survey will take approximately 20 minutes and is completed online at your computer. There are no known risks or discomforts associated with this survey. Taking part in this study is completely voluntary. If you choose to be in the study, you can withdraw at any time without adversely affecting your relationship with anyone at the University of Oklahoma Health Sciences Center. Your responses will be anonymous, and digital data will be stored in secure computer files. Any report of this research that is made available to the public will not include any information by which you could be identified. This study has been approved by the University of Oklahoma Institutional Review Board.
Please feel free to print a copy of this consent page to keep for your records.