This survey is designed to gather insights into the experiences of adults with Duchenne muscular dystrophy (DMD), focusing on symptoms, diagnosis, and the use of corticosteroids (prednisone, Deflazacort, Vamorolone). We are especially interested in understanding how you were diagnosed with DMD.
This survey takes 5-10 minutes to complete. Participation is voluntary, and your responses will remain anonymous. While the risk of identifying participants from the study data is extremely low, it cannot be completely ruled out.
This project is being conducted by Muscular Dystrophy Canada (MDC) in collaboration with Children's Hospital of Eastern Ontario (CHEO), BC Children's Hospital and Holland Bloorview Kids Rehabilitation Hospital.
By completing this survey, you consent to the study team viewing and using your responses and comments as part of this research study.
In this survey, “you” means the person with DMD. If you are completing this survey on behalf of a person you care for, your responses should relate to that individual.