Strengthening the Voice of Lived Experience in SA

This survey relates to a project focused on Exploring Pathways for Strengthening the Voice of Lived Experience in SA. It is being completed by Ellie Hodges and is supported by the South Australian Mental Health Commission.

This project is a critical step in putting a spotlight on lived experience activities, development and influence in SA and adds weight to the question of why, outside of the NT, is SA the only state or territory jurisdiction that does not have a peak body for consumers with a lived experience of mental health issues or an organised way for influencing policy.

One of the options being explored for strengthening the voice of lived experience is the idea of establishing and developing an entity that brings both consumers and carers together. This entity could be a network, a peak body, a group of organisations and people - or similar - working together collaboratively and in partnership to create and influence change.

Whilst the entity for strengthening lived experience voice will be focused on the South Australian context this survey is open more widely as we know that we can learn from other people and/or organisations who may be located elsewhere.

We thank you for taking the time to participate and invite you to contact Ellie with any questions or comments you may have. Ellie can be reached on ellie.hodges@sa.gov.au or 0422 888 157.

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* 1. Do you identify as someone with a lived experience of mental health issues?

Yes, as a consumer
(someone who experiences or has experienced a mental health issue)

Yes, as a carer
(someone who cares or has cared for someone with a mental health issue)

Yes, as both a consumer and carer

Not sure

I work with people who have lived experience (as a consumer and/or carer) of mental health issues

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* 2. Where do you live?

Adelaide Metro Area of South Australia

Rural / Regional South Australia

Somewhere else in Australia

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* 3. What is your current interest and/or involvement with lived experience issues and activities?

I receive emails and/or follow them on social media

I have been a consumer and/or carer representative or advocate

I have been a consumer and/or carer consultant, expert by experience, peer worker or similar

I follow and/or get involved in mental health awareness campaigns

I haven't been involved, but I would like to

I support people with lived experience in my work

Other (please specify)

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* 4. If any entity of some kind was established how would you like to be involved?

Receiving regular emails and information related to lived experience and mental health initiatives in SA

Being an active member helping with the collaboration, planning and/or delivery of their activities

Supporting their work behind-the-scenes (eg social media admin, research help, editing, consultation, etc)

Attending training and workshops related to my own recovery or that of someone I care for

Attending training and workshops related to lived experience advocacy and representation

Attending informal gatherings with other people with lived experience for shared support, learning and/or development opportunities

Attending training from the lived experience perspective to inform the work I do supporting people with mental health issues

Attending training from the lived experience perspective to inform the work I do facilitating consultations, designing services and/or making policy decisions

Other (please specify)

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* 5. What work and activities should the entity engage in? (please choose 3 only)

Writing submissions and providing comment on policy and plans relevant to people with lived experience in SA

Advocating for and representing people with lived experience through consultation, collaboration and partnership

Training and workshops for people with lived experience for their own recovery and/or the person they care for

Support the development of lived experience leadership as well as skills for advocacy and influence in SA

Training and workshops for clinicians, services manager's and policy maker's

Researching and writing papers on issues relevant and important to people with lived experience in SA

Be the go-to group in South Australia for information related to people with lived experience and/or mental illness

Other (please specify)

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* 6. What helps, or would help, you to be involved in lived experience speaking, advocacy and/or the work of such an entity?

Having time

Having the skills and support to be involved

Knowing and respecting others that are involved

Believing it makes a difference

The option of providing comment and answering questions online

Having the support of my workplace

When there is renumeration and/or payment

Other (please specify)

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* 7. How would you want to be consulted about your experience's and the issue's that are important to you? (please choose 3 only)

Informal conversations, individually or in a group

Workshops and/or community forums

Releasing a briefing paper seeking comment

Through email newsletters and social media

With online survey's

Through established networks

Other (please specify)

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* 8. What benefit do you think an entity focused on strengthening the voice of lived experience in SA could have for yourself and/or the person you care for?

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* 9. How well do you think lived experience perspectives, issue's and strategies are understood, supported and developed in South Australia at the moment?

not very well at all

it really varies

very well

not very well at all

it really varies

very well

Other (please specify)

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* 10. Is there anything else you would like to say or ask about the content of this survey?
(If you would like to be updated about this project or other initiatives for strengthening the voice of lived experience in SA please add your email address here)

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* 1. Do you identify as someone with a lived experience of mental health issues?

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* 2. Where do you live?

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* 3. What is your current interest and/or involvement with lived experience issues and activities?

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* 4. If any entity of some kind was established how would you like to be involved?

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* 5. What work and activities should the entity engage in? (please choose 3 only)

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* 6. What helps, or would help, you to be involved in lived experience speaking, advocacy and/or the work of such an entity?

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* 7. How would you want to be consulted about your experience's and the issue's that are important to you? (please choose 3 only)

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* 8. What benefit do you think an entity focused on strengthening the voice of lived experience in SA could have for yourself and/or the person you care for?

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* 9. How well do you think lived experience perspectives, issue's and strategies are understood, supported and developed in South Australia at the moment?

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* 10. Is there anything else you would like to say or ask about the content of this survey? (If you would like to be updated about this project or other initiatives for strengthening the voice of lived experience in SA please add your email address here)

* 10. Is there anything else you would like to say or ask about the content of this survey?
(If you would like to be updated about this project or other initiatives for strengthening the voice of lived experience in SA please add your email address here)