SURVEY INSTRUCTIONS: PLEASE READ CAREFULLY This survey is intended only for parents and caregivers of children who have a hearing loss - anywhere in the world.
The survey will take approximately 10 minutes to complete. Your participation in this survey is completely voluntary. Your survey responses will be anonymous and if you feel uncomfortable answering any questions, you can withdraw from the survey at any point.
The term “professional” is used throughout the survey. For the purposes of this survey, “professional” can refer to a variety of different people including an audiologist, paediatrician, teacher of deaf students or any other professional that you have consulted about your child’s hearing loss.
PURPOSE OF SURVEY The results will be used to produce formal recommendations for Best Practice in Family Support and will be presented at NHS 2010 in Como, Italy – the final international conference on newborn hearing screening.
WHO IS COLLECTING THIS INFORMATION? The survey is being undertaken by GPOD – a Global Coalition of Parents of children who are deaf or hard of hearing - which was formed at NHS 2008 with the goal of "promoting improved systemic protocols and practices which encourage informed choice and the empowerment of families with a deaf child throughout the world."
CONTACT INFORMATION If you have any questions about the survey or would like to know the results of the survey, please contact: Janet Des Georges – firstname.lastname@example.org Ann Porter – email@example.com
Thank you very much for taking the time to participate in this survey!
MESSAGE TO ORGANISATIONS AND SERVICE PROVIDERS We are mindful that many families will not have access to the Internet. We would appreciate it if organisations and service providers could print this survey and distribute it to families and carers in their region, if required. Please mail completed hard copies to: Ann Porter Aussie Deaf Kids 35 Wharf 8 56A Pirrama Road Pyrmont NSW 2009 Australia