The HCMA is conducting this voluntary survey and we wish to fully inform you of its purpose. The HCMA knows how important your privacy is and we want to ensure you that your privacy will be maintained with the highest degree of confidentiality. The information contained in this survey is about  investigational drug studies sponsored by MyoKardia Inc., a pharmaceutical company, in collaboration with several clinical sites (named in the survey) for the purpose of a clinical trial on a new compound, mavacamten, for use in those with hypertrophic obstructive cardiomyopathy (HOCM) and hypertrophic cardiomyopathy (HCM). 
The purpose of this survey is to gather preliminary information, which means we will ask you questions about your experience with HCM and those answers will help determine if you might be a good fit for the study. Once you have completed the questions you will have the opportunity to learn about your responsibilities, should you be interested in participation in the study, including number of visits to the clinic, types of testing you will be required to undergo and similar information. You will then be given the opportunity to request your contact information be sent to a research coordinator who will discuss the study further with you.  You may be compensated for your time and travel based on each study visit. If you qualify to participate in the study, the study staff will inform you on the exact payments per visit.
This survey should take you no more than 15 minutes to complete. You are under no obligation to complete it. There are no risks associated with taking this survey. You may not personally see a benefit. Further, you may not qualify for the study at this time. 
Information you choose to share contained in the survey that contains personal identifier information (your name, address, phone, email and answers to the questions) will ONLY be shared with the research coordinator/s you choose. Aggregate reports about those completing the survey will be provided to the study sponsor and will include no personal identifiers. 
You may opt out of completing this survey by exiting now or at any time prior to the end of the survey. Once you have submitted the survey on the final page the only way to remove yourself from the survey is to call the HCMA office, provide your name and email address that you indicated on the survey. 
If you have any questions at any time please contact the HCMA office at 973-983-7429 and you may direct your questions to Lisa Salberg or to the staff of the HCMA, the phone line is staffed 9-5 Monday- Friday eastern time. You may email questions to support@4hcm.org and we will reply as soon as possible. We have provided this introduction to ensure that all parties have an understanding of the purpose of the survey and that by completing the survey you have given informed consent. 
Thank you for your time and attention to this important matter!

Question Title

* 1. Do you currently have Hypertrophic Cardiomyopathy (HCM). HCM is defined as walls of the left ventricle (LV) measuring 1.5cm or greater in any portion of the LV, with or without known genetic mutation?

Question Title

* 2. Are you 18 years of age or older?

Question Title

* 3. Do you weigh at least 45kg/100lbs?

Question Title

* 4. Were you told your HCM is related to amyloidosis or sarcoidosis?

T