The purpose of this study is to learn whether people diagnosed with cancer experience social stigmatization or discrimination in Newfoundland and Labrador (NL) because of their disease. If so, we are also interested in how common these experiences are; who stigmatizes or discriminates them; and what impacts occur in patients’ lives as a result.
If you have been diagnosed with cancer, are 18 years or older, and have lived in NL at anytime since your diagnosis you are eligible to take part in this study. The information you share will help us better understand the social factors that affect the experiences of cancer patients.
The purpose of this first page is to provide you with more information about the study so that you can decide whether you want to take part. Please read this carefully, then proceed when you are ready.
Taking part in the study is completely voluntary. It is up to you to decide whether to be in the study or not. If you decide to take part and complete the survey, you are free to stop at any time. Taking part in this survey will not affect any health care which you receive.
The survey should take about 20-25 minutes to complete. Please note that there are no right or wrong answers; we are only interested in your opinions. If you come to a question that you do not want to answer or do not understand, you can skip it.
Participants will have the option to enroll in a draw for a chance to win one of 20 gift cards worth $25 each.
Risks and Discomforts
There are no expected risks and discomforts to taking part in this study. However, some people may find it difficult or stressful to think about their cancer-related experiences. If you experience any difficulty and need help, we encourage you to call the Mental Health Crisis Line at 1-888-737-4668 (24 hours).
Protecting your privacy is an important part of this study. Your answers will be anonymous. No identifying information such as your name, email address or IP address will be collected in the survey. However, if you choose to participate in the gift card draw, your name and contact information will be collected. Information collected for the draw will NOT be linked to your survey responses. This information will be handled independently by the Health Research Unit (Faculty of Medicine) and will not be shared with anyone, including the study primary investigators and co-investigators.
Please do not refer to yourself or other people by name. If you accidentally do identify yourself or another individual, we will remove that information in order to safeguard confidentiality. Your name will not be recorded or used in any papers or reports prepared from the survey data.
The on-line survey company, Survey Monkey, hosting this survey is located in the United States. The US Patriot Act allows authorities to access the records of internet service providers. Therefore, anonymity and confidentiality cannot be fully guaranteed if you choose to participate in this survey. However, ONLY the information you provide in this survey will be stored and may be accessed in the US. Your computer IP address or email address will NOT be automatically collected.