Purpose of the Survey: This survey is being conducted by the Biotechnology Innovation Organization. We are hoping to hear from patients about how COVID-19 may have impacted or is currently impacting patients’ abilities to participate in clinical trials. Additionally, if trials have been altered, we’re trying to better understand if the changes that have been implemented have reduced or added to the burden for patients participating in clinical trials. If you have any questions about this survey please contact Danielle Friend at dfriend@bio.org. We appreciate your participation! The survey results will be analyzed on a rolling bases beginning August 31, 2020. The questions outlined below apply only to experimental treatment trials, NOT natural history studies.

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* 1. What is your age?

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* 2. How do you identify yourself?

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* 3. Are you currently enrolled in a clinical trial or were you enrolled in a clinical trial during the COVID-19 pandemic?

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