Children In Hospital Ireland is creating a new digital information hub for families with a child receiving hospital care in Ireland.

We would to include general information to help parents cope, know what to expect and how or where to find support and resources when they initially find out their child may need hospital treatment or surgery, has received a diagnosis or is undiagnosed. 

We would like to include anonymous quotes in the Resource Hub based on the answers provided in this survey. If you prefer your answers are not used in this manner please select no in question 6.

We understand this is a difficult and complex topic with vastly different needs for information and support and we will endeavour to categorise information in sections that will be useful to a wide range of needs.

Thank you for participating in our survey.

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* 1. If you could provide advice for parents when they find out their child may need hospital treatment or surgery, has received a diagnosis or whose child is undiagnosed, what would your advice be? Examples - how you might be feeling, what to do next, who to talk to etc

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* 2. Are there any resources or supports you found particularly useful that we could direct other parents to?

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* 3. Do you have any tips or advice around using internet searches to find information?

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* 4. Many parents have told us that other parents are a vital source of support and information. Please complete this question if you have tips or suggestions for other parents about the benefit of connecting with other parents and/or how to find other families with similar experiences.

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* 5. Optional: Please use this section if you would like to share any aspect of your experience when you first found out your child would need hospital care or surgery, received a diagnosis or has no diagnosis. You may also use this section in include any additional suggestions for information that might be useful to include in this section.

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* 6. Information provided can be used as anonymous parent quotes/parent tips in the Resource Hub.

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* 7. Optional  - Occasionally we like to follow up with individual survey participants regarding survey responses - for example to get additional feedback. 
If you are willing to be contacted if we have any follow up questions regarding your survey responses please provide name and email below.

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* 8. For new survey participants
If you would like to receive information on opportunities to provide input into design of the Digital Resource Hub and other CIH projects please indicate your preference below and provide your name and email address

Thank you for participating in our content planning survey and helping us ensure that our new parent guide contains the most important information parents need to prepare for their child's hospital admission. For more information about this and other patient and family support projects please visit our website at www.childreninhospital.ie/resource-hub/

Please contact helen@childreninhospital.ie if you have any questions regarding this survey or project.

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