Your stoma journey This survey is intended for ostomates and their carers. If this does not apply to you, please do not complete the survey. Question Title * 1. What age range are you? Under 18 18-24 25-34 35-44 45-54 55-64 65+ Question Title * 2. What type of stoma do you have? (Feel free to select more than one option) Ileostomy Colostomy Urostomy Question Title * 3. How long have you had your stoma? I have not yet had my stoma surgery 0 - 6 months 7 - 12 months 1 - 2 years 3 - 5 years 6+ years Question Title * 4. What type of support did you require at each stage of your ostomy journey? This stage is not applicable to me Practical information (e.g. what to expect, daily routines, recovery tips) Product information Delivery service information Emotional and mental well-being (coping, anxiety and confidence) Peer and community support (personal testimonials, speaking to others) Professional support (speaking to a nurse or HCP) Connection and belonging (connecting with a community, attending events) Pre operation Pre operation This stage is not applicable to me Pre operation Practical information (e.g. what to expect, daily routines, recovery tips) Pre operation Product information Pre operation Delivery service information Pre operation Emotional and mental well-being (coping, anxiety and confidence) Pre operation Peer and community support (personal testimonials, speaking to others) Pre operation Professional support (speaking to a nurse or HCP) Pre operation Connection and belonging (connecting with a community, attending events) 0 - 3 months after operation 0 - 3 months after operation This stage is not applicable to me 0 - 3 months after operation Practical information (e.g. what to expect, daily routines, recovery tips) 0 - 3 months after operation Product information 0 - 3 months after operation Delivery service information 0 - 3 months after operation Emotional and mental well-being (coping, anxiety and confidence) 0 - 3 months after operation Peer and community support (personal testimonials, speaking to others) 0 - 3 months after operation Professional support (speaking to a nurse or HCP) 0 - 3 months after operation Connection and belonging (connecting with a community, attending events) 4 - 12 months 4 - 12 months This stage is not applicable to me 4 - 12 months Practical information (e.g. what to expect, daily routines, recovery tips) 4 - 12 months Product information 4 - 12 months Delivery service information 4 - 12 months Emotional and mental well-being (coping, anxiety and confidence) 4 - 12 months Peer and community support (personal testimonials, speaking to others) 4 - 12 months Professional support (speaking to a nurse or HCP) 4 - 12 months Connection and belonging (connecting with a community, attending events) 1 - 3 years 1 - 3 years This stage is not applicable to me 1 - 3 years Practical information (e.g. what to expect, daily routines, recovery tips) 1 - 3 years Product information 1 - 3 years Delivery service information 1 - 3 years Emotional and mental well-being (coping, anxiety and confidence) 1 - 3 years Peer and community support (personal testimonials, speaking to others) 1 - 3 years Professional support (speaking to a nurse or HCP) 1 - 3 years Connection and belonging (connecting with a community, attending events) 3+ years 3+ years This stage is not applicable to me 3+ years Practical information (e.g. what to expect, daily routines, recovery tips) 3+ years Product information 3+ years Delivery service information 3+ years Emotional and mental well-being (coping, anxiety and confidence) 3+ years Peer and community support (personal testimonials, speaking to others) 3+ years Professional support (speaking to a nurse or HCP) 3+ years Connection and belonging (connecting with a community, attending events) Question Title * 5. Which formats do you use for support? Websites Blog posts/articles Videos Social media Email and direct message Printed leaflets/booklets In-person events 1-1 peer support AI/ChatGPT Question Title * 6. What questions did you have at each stage of your journey? (Feel free to not answer stages not applicable to you) Pre operation 0 - 2 months after operation 3 - 6 months 7 - 12 months 1 - 2 years 3 - 5 years 6+ years Question Title * 7. Looking back, what kind of support was most helpful to you during your stoma journey? Question Title * 8. What type of support do you feel was missing, or would have made your journey easier? Done
