Currently, Georgia PKU Connect is conducting a survey for all inherited metabolic conditions (e.g. PKU, VLCAD, MSUD, etc.). If you or your child has an inherited metabolic condition, we would like your feedback about living with this experience. Our hope is to use this information to create more support and resources for Georgian families.
All responses will be held confidential – no names or other identifying information will be collected - and used only for the purpose of decision making by Georgia PKU Connect. Results will be shared in a summarized format with Emory Clinic to coordinate resources promoting a community support network. Your assistance by completing this survey is greatly appreciated.
Georgia PKU Connect is a non-profit organization dedicated to connecting individuals with PKU to the resources they need to manage their condition.