Childhood dementia encompasses more than 145 individual genetic conditions that cause progressive brain and nervous system damage in children. Many children with these conditions access the National Disability Insurance Scheme (NDIS) and receive support from disability support professionals. These professionals are critical partners in ensuring children and their families receive the best possible care.
Childhood Dementia Initiative (CDI) is developing targeted information and education resources for disability support professionals. We want to understand what you need to know and how you would prefer to receive that information.
This survey should take approximately 10–15 minutes to complete.
