Survey Goals/ Objectives
1. To explore the clinical, psychosocial, and supportive care needs and gaps experienced by adults diagnosed with early age onset cancer (EAOC) throughout treatment and survivorship.
2. To evaluate patient access, utilization, and experiences with hospital-affiliated multidisciplinary EAOC clinics or programs to inform future care improvements.
Introduction
Thank you for participating in this online survey designed for Canadians diagnosed with cancer between the ages of 18-49 years old. This survey focuses specifically on hospital and healthcare-affiliated EAOC/Adolescent and Adult (AYA) clinics and programs. We acknowledge that community-based programs offer valuable complementary support but are outside the scope of this study. The data collected will contribute to the Colorectal Cancer Resource & Action Network’s (CCRAN’s) National Education and Advocacy initiatives promoting best practices in EAOC care. These efforts are in response to the challenges faced by younger cancer patients across various tumour types. The survey results will highlight gaps and barriers in care during treatment and survivorship and explore how specialized clinics can better support their unique needs. Findings will be presented at the upcoming EAOC Symposium, November 20-21, 2025, to guide improvements in care and services for people diagnosed with EAOC.
The survey will take approximately 14 minutes to complete. We sincerely appreciate your time and the opportunity to learn from your personal healthcare experience. Our goal is to enhance the quality of care, support services, and overall patient experience for people diagnosed with EAOC.
Who Can Complete This Survey?
1. Any Canadian cancer patient or survivor who was diagnosed with cancer between the ages of 18 – 49, in the past ten years, and received healthcare in Canada.
2. Caregivers or representatives may complete the survey on behalf of the patient. Please answer all questions based on the patient's experiences and information (e.g., not your demographic information).
If you have any questions about this survey, please feel free to write to us at shalini.g@ccran.org or call us at 1 833 792 2726 x1005. We would be happy to discuss these with you.
Privacy Policy
All survey data is being collected by CCRAN, a Canadian non-profit patient-led support and advocacy group. To ensure privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used in the final report generated after the survey results are analyzed and reviewed but no reference to clinician name or any other identifying information will be used.
